Get support
IDF is your home for hope.
Has your life been impacted by PI? When navigating symptoms, diagnosis, treatment, insurance, and emotions, turn to IDF for answers and connections.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Make meaningful connections
Peer support program
Make a connection with someone who understands. We'll help pair you with a peer who has had similar experiences with PI.
Explore peer support
Support groups
Whether you prefer face-to-face interaction or prefer to meet virtually, IDF coordinates many support groups.
See all groups
IDF Friends
IDF Friends connects parents of children living with PI with other parents in similar circumstances.
Meet other parents
Patient Bill of Rights
From privacy to fair treatment, understanding your rights is the first step in advocating for yourself or a loved one.
Read Bill of Rights
TODO: add quote and related video/photo. [FPO] “I found a home in IDF because, for the first time, I met people who were parents of [PI] patients.”
Sharing experiences
It can be a healing experience to see how other people navigate their PI journey and to share your own story.
Resources just for you
PI impacts many lives. If you are living with PI, think you might have PI, are a caregiver, or healthcare professional, perhaps these resources will help.
- Antimicrobials
- Bone marrow transplant & HSCT
- Gene therapy
- Genetic testing & counseling
- Health equity
- Infants & children
- Infectious disease (COVID & flu)
- Insurance and financial assistance
- Mental health
- Newborn screening (NBS)
- Patient stories
- Plasma & Ig therapy
- Policy
- Related conditions
- Research
- Self advocacy
- Teens & young adults
- Understanding PI
- Vaccines
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