If you received a postcard or e-mail about the upcoming IDF 2017 National Patient Survey, please be on the lookout for your survey packet in the mail next week. Developed with immunologists who are experts in primary immunodeficiency diseases (PI), including Chronic Granulomatous Disease (CGD), the purpose of the IDF 2017 National Patient Survey is to learn more about the how PI impacts individuals’ lives; including experiences prior to diagnosis, access to care and treatment.
Completing this survey is particularly important for families affected by CGD. CGD affects an estimated 1,200 people in the U.S. and approximately 25,000 people worldwide. Participating in the IDF 2017 National Patient Survey helps not only the larger PI community but will help increase what is currently known about CGD and patient experiences.
If you have any questions, please contact IDF: 800-296-4433 or firstname.lastname@example.org.