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New Resource for Those Living with a Rare Disease

August 15, 2019

Today, one in 10 people are living with a rare disease. This week, a new website was launched for the more than 350 million people around the world who are living with a rare disease, and a place for each unique voice and journey to come together around shared experiences. Resources on the new website include help to manage life transitions when living with a rare or chronic disease and the community blog with a multitude of guest posts. You can also add your voice to the community and share what #RAREis means to you.

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