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Online Group for CGD Provides Community Support During the COVID-19 Pandemic

June 12, 2020

Chances are that you belong to a few groups on Facebook. While many of these groups serve a crucial role for individuals looking for advice, there is something different about being able to meet, converse, and potentially make friends with someone who shares your experiences.

To keep our community safe, the Immune Deficiency Foundation (IDF) has moved its ongoing support groups, Get Connected Groups, to an online format using Zoom (with call-in option) to help individuals maintain their health and well-being during this time of uncertainty. Virtual programming has opened up new opportunities to bring people together who may not have had local face-to-face support groups, particularly the diagnosis-specific community that may be spread out geographically.

IDF is excited to be offering our first Chronic Granulomatous Disease (CGD) Get Connected Group, on Saturday, July 25, 12:00 - 1:30 PM ET. This group will bring together people with CGD and their families to share feelings, coping strategies, or firsthand experience about their condition or treatments. During these challenging times, Get Connected Groups help people feel less isolated, reduce anxiety, and improve coping skills. To learn more about this program and to register, please visit https://primaryimmune.org/event/idf-virtual-get-connected-chronic-granulomatous-disease-cgd. We hope to see you there!

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