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Share Your Experience Living with CGD

August 19, 2019

The Immune Deficiency Foundation (IDF) is excited to launch our very first CGD-specific survey, and we encourage you to participate when the survey is available in the upcoming weeks.

Development of the CGD Survey was a collaborative effort—immunologists who are experts in primary immunodeficiency diseases, including CGD, worked with IDF and the CGD Association to create the questionnaire. This survey aims to learn more about the how CGD affects diagnosis and treatment, along with overall well-being and quality of life.

Completing this survey is particularly important for families affected by CGD. CGD affects an estimated 1,200 people in the U.S. and approximately 25,000 people worldwide. Participating in the CGD Survey will help increase what is currently known about CGD.

Please be on the lookout for the Chronic Granulomatous Disease (CGD) Survey in your inbox in the next few weeks. Your participation is important to our community!

If you have any questions, please contact IDF at: 800-296-4433 or

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