More than 100 New Englanders gathered April 28 in Norwood, MA for the Immune Deficiency Foundation Family Conference Day, an educational program for individuals living with primary immunodeficiency diseases and their family members.
Families from four states, Massachusetts, Rhode Island, New Hampshire and Connecticut, learned about IDF resources, IgG product manufacturing, immune dysregulation versus deficiency, navigating between specialists, enrolling in USIDNet and critical public policy issues.
A question and answer session allowed patients and caregivers to speak directly to the medical experts who presented at the event, including Francisco Bonilla, MD, PhD from Children’s Hospital Boston, a member of the IDF Medical Advisory Committee, and Jolan Walter, MD, PhD from Massachusetts General Hospital.
But the day’s program was not just for adults. Children ages five and up participated in their own activities, and even teens benefited from the experience. Haley Malloy, a spirited member of IDF Teen and Young Adult Council, personally spoke with teens and promoted the upcoming IDF Teen Escape in Cincinnati, OH, August 4-5.
IDF volunteers Stefanie Bush, Towma Rastad and Susan Giorgia-Branch pitched in and helped the day move along smoothly. The event raised $750 for IDF through IDF Zebra Ribbon Pin donations.
IDF Family Conference Day connected New Englanders of the primary immunodeficiency community, created awareness about current issues they face, and raised funds for IDF. Thank you to all those who helped make the day a success!