The Immune Deficiency Foundation (IDF) welcomed many new faces to the IDF Retreat in Houston, held September 7-9. Out of the more than 200 participants, 67% had never attended an IDF event. Both those new to IDF and those already familiar with the Foundation agreed that the retreat was a worthwhile experience.
“Thank you for a wonderful weekend,” commented one participant, “It was life changing to meet other people with immune deficiencies. I feel so empowered and not alone. I am so thankful to have connections and help when I need it.”
Patients and family members traveled to Houston from 21 states and Canada. Sessions and presenters included:
- IDF Today
Marcia Boyle, IDF President & Founder
- Overview of Primary Immunodeficiency Diseases
Jordan S. Orange, MD, PhD of Baylor College of Medicine, Texas Children’s Hospital
- Autoimmune Issues and Primary Immunodeficiency
Ricardo Sorenson, MD of LSU Health New Orleans School of Medicine, Children’s Hospital
- General Care for Individuals Living with PIDD
Stephen Miles, MD of All Seasons Allergy, Asthma and Immunology Center
- Managing Respiratory (Sinus & Lung) Issues
Richard Wasserman, MD, PhD of Dallas Allergy Immunology, and Allergy and Asthma Associates of North Texas
- Treatment Options for PIDD
Celine Hanson, MD of Baylor College of Medicine, Texas Children’s Hospital
Maggi R. Dodds, BSN, MSN, CPNP of Baylor College of Medicine, Texas Children’s Hospital
- IDF eHealthRecord
Colin Seal, Program Manager at the Immune Deficiency Foundation
- Dealing with Depression
Jennifer Pate, MD of St. Luke’s Episcopal Hospital
- Health Insurance: Protecting Access to Care
Insurance Basics: Selecting a Plan, Appeal Process
Elizabeth Stoltz of Baxter Healthcare Corporation
- Affordable Care Act Update
Gavin Lindberg of Grifols Inc.
- Souvenirs: Taking the Retreat Experience Home with You
John Seymour, PhD, LMFT of Minnesota State University – Mankato
Participants had the opportunity to pose questions during “Ask the Medical Experts” sessions, and they connected with each other during a “Person to Person” session.
While adults attended these helpful sessions, kids took part in the youth program specifically designed to educate and entertain young people living with primary immunodeficiency diseases. From infants to teens, there was something throughout the weekend for kids of all ages. Kids definitely enjoyed Saturday night’s entertainment - the NASA Planet Hunter Show.
Overall the retreat allowed participants - both new and familiar faces - to learn more about living with primary immunodeficiency and to make meaningful connections with others. One attendee said, “It has been a blessing to have been part of this weekend.”
Thank you to all who made the IDF Retreat in Houston possible!
Click here for a complete list of upcoming IDF events. Save the Date for the IDF 2013 National Conference in Baltimore, MD: June 27-29!