Sunny skies and breathtaking beaches made the city of Ft. Lauderdale, FL a refreshing backdrop for the latest Immune Deficiency Foundation Patient Education Meeting, held May 12. But the picturesque landscape paled in comparison to the bright, smiling faces of many new patients and family members arriving at the meeting—their first IDF event.
IDF Patient Education Meetings allow the Foundation to share its resources and the latest information directly with individuals around the country living with primary immunodeficiency diseases and their family members. The 45 Ft. Lauderdale participants, including 67% who had never attended an IDF event before, learned about caring for their primary immunodeficiency diseases from medical experts Vivian P. Hernandez-Trujillo, MD and William Blouin, MSN, ARNP, CPNP, both from Miami Children's Hospital. Lynne Szott, RN of CSL Behring gave patients and family members an update about the Affordable Care Act and how it will affect them.
Life coach and psychotherapist Bonnie Klein Ritt, LCSW kicked off the Person-to-Person session by sharing information about living with chronic illness. Patients then spoke to one another and shared their stories.
The feedback from the meeting was positive. Comments included:
- “The support felt from the room of attendees was so helpful and encouraging.”
- “Great meeting! Thank you for coming to Ft. Lauderdale.”
- “Great event! I am happy I was able to make it and I am now convinced that I need to start treatment!”
IDF volunteer Jenny Gardner helped IDF staff member Colin Seal, Program Manager, pull off a great day. Most importantly, those who contributed to the day’s success helped reach new people in the Sunshine State!