At 18 months old, London was diagnosed with Transient Hypogammaglobulinemia of Infancy (THI) and placed on monthly IVIG, but her symptoms didn’t improve. After connecting with the Immune Deficiency Foundation, the family was directed to Dr. Luke Wall, an immunologist at the Children’s Hospital of New Orleans Louisiana (CHNOLA). From there, London underwent multiple tests and finally received a diagnosis of hypogammaglobulinemia and started bi-weekly infusions.
“Everything she does is with such zebra strength and a smile on her face. We as a family feel it’s important to give back to those who have been there for us,” notes her mother Michelle, who is a member of IDF’s Hypogammaglobulinemia Facebook group, where she has made lifelong friends and connected with fellow parents who are seeking support on their PI journey.
Today, London is eleven years old and gives back to IDF by hosting fundraisers during National PI Awareness Month in April and around her birthday in December. Although birthdays are usually a time to celebrate oneself, London selflessly uses this as an opportunity to raise funds for IDF and help others in the IDF community.
Her mother is in awe of her generosity and bravery and says, “She has truly taught us the meaning of zebra strong and we will be forever grateful for the Immune Deficiency Foundation.”
London has also inspired her father to give back to the IDF Community, which he does by donating plasma as often as he can. Since many individuals living with PI rely on plasma donations for life-saving treatments, this is another great way to help and you can learn more on www.PlasmaHero.org.
Finally, her mother says, “We have always taught her that although she may have to do things differently it does not make them impossible.” From her generosity in her philanthropic efforts to her inspiring her family, London has made a big impact for those living with PI.