IDF Premieres New Patient Advocacy Engagement Toolkit as a Resource for Advocates
At the Immune Deficiency Foundation (IDF), advocacy is an essential element in achieving our mission of improving the diagnosis, treatment, and quality of life of those affected by primary immunodeficiency (PI). To overcome healthcare barriers faced by the PI community, IDF maintains a robust advocacy program that focuses on national, state, and local healthcare issues. By engaging with both elected officials and agency representatives, IDF and our advocates can influence the policies and regulations that surround issues important to our community. Understanding how integral our advocates' efforts are, IDF is introducing a new resource to help guide individuals through different avenues of advocacy!
IDF's new Patient Advocacy Engagement Toolkit walks PI community members through the basics of legislative and administrative advocacy and how they can get involved in the process. Reviewing this material will help inform individuals on how to engage with their legislators and agency officials, as well as how they can help ensure that laws and regulations are meeting the unique needs of those in the PI community. With a wide array of information provided, the Patient Advocacy Engagement Toolkit offers something to everyone, whether you are just beginning to explore advocacy or are a seasoned volunteer for the PI community.
Advocacy is a collaboration between IDF and our volunteers. We encourage those in the community to explore this new resource and reach out to IDF staff to join a team effort towards real change through advocacy. We are optimistic that the Patient Advocacy Engagement Toolkit will be a valuable asset to our PI community advocates. Thank you to our dedicated volunteers, and happy advocating!