The Immune Deficiency Foundation (IDF) is happy to announce the passage of House Bill 412 (HB 412) in Ohio. This important bipartisan legislation, sponsored by Representative Randi Clites and Representative Timothy Ginter, will create the Ohio Rare Disease Advisory Council to give a voice to the Ohio rare disease community, including individuals with primary immunodeficiency (PI).
IDF is proud to have supported the passage of HB 412 in the Ohio State Legislature and looks forward to working closely with and supporting the Ohio Rare Disease Advisory Council once it is formed. Once this bill is signed into law, it will bring together medical researchers, physicians, nurses, individuals living with rare diseases, lawmakers and state officials to begin addressing many of the issues facing Ohioans living with rare diseases.
“In passing this legislation, the legislature paves the way to providing the expertise that lawmakers need to solve the issues facing those living with a rare disease, creating better healthcare policy in the state, and delivering better access to government to those living with a rare disease,” said Representative Clites.
This important legislation now goes to the Governor's desk, where IDF hopes Governor Mike DeWine will sign this bill into law. Follow IDF’s social media channels for updates on HB 412!