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Primary Immunodeficiency Conference offers education, connection

September 20, 2022

This year’s Primary Immunodeficiency Conference offers educational sessions from medical experts and patients, the opportunity for in-person connection in select cities, and even a magic show!

TikTok influencer Ilana Jacqueline kicks off the conference online Thursday, October 6 at 4 p.m. ET (1 p.m. PT). She will be speaking with IDF CEO and President Jorey Berry about her struggle to receive a diagnosis and living with hypogammaglobulinemia. Later that evening (8 p.m. ET, 5 p.m. PT), join us for a family-friendly online mindreading magic show featuring Joshua Seth, best known as the voice of Tai from Digimon.

Friday, October 7 features virtual sessions organized into three different tracks starting at 10 a.m. ET (7 a.m. PT). 

  • The “KNOW Your Diagnosis” track focuses on in-depth information on specific PI diagnoses, such as common variable immunodeficiency (CVID) and hyper IgM syndromes, from leading medical experts. 
  • The “UNDERSTAND the Science” track provides information on PI-related medical topics, such as participating in clinical studies, family planning, and genetic testing. 
  • The “NAVIGATE the Journey” track centers on day-to-day life as a person with PI and includes sessions on fatigue, mental health, and health insurance. 
Primary Immunodeficiency Conference sessions by track.
Conference sessions on Friday, October 7 by track.


The “Heroes of the Herd” awards celebration wraps up the day at 7 p.m. ET (4 p.m. PT).

While the first two days are entirely virtual, you can join others to watch Saturday’s sessions in person in Cerritos, CA, Linthicum, MD, or Chicago, IL. Saturday’s sessions include a panel on the future of COVID-19 featuring Dr. Adi Gundlapalli from the Centers for Disease Control and Prevention (CDC) and a panel discussion on what it means to be immunocompromised featuring patient voices from within and beyond the PI community. COVID-19 safety protocols, including proof of vaccination (or a negative COVID-19 test) and masking, will apply at all three locations.

For the first time ever, the Walk for PI fundraiser is part of the conference! Each in-person location will host a Walk before the viewing party begins, and the virtual Coast to Coast Walk will also take place on Saturday, Oct. 8 at 12:30 p.m. ET (9:30 a.m. PT). Registration for walks is separate from conference registration, so be sure to complete both.

Be part of the premier primary immunodeficiency connection and education event of the year—register now for IDF’s 2022 Primary Immunodeficiency Conference:

Register Now

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