It all started in 2013. Three walks in three cities across the country: Philadelphia, Los Angeles and Chicago. Members of the PI community wanted a way to create awareness about primary immunodeficiency diseases (PI), and IDF Walk for PI soon became their answer.
2013 IDF Walk for PI - Los Angeles
Each year the walk grew and expanded—soon setting foot in 12 cities. In 2016, the PI community raised more than $1 million to fund educational resources and help support research of PI.
2014 IDF Walk for PI - Boston
When you walk for PI, you’re doing more than just donating your time and money to a charity. You’re bringing attention to a set of rare diseases that most people—even those recently diagnosed—don’t know anything about.
Based on research conducted by IDF, we know that it can take between nine and 15 years for an individual unknowingly living with a PI to receive a diagnosis. That means each year they face recurrent infections running from specialist to specialist, trying to figure out why they continue to get sick.
2015 IDF Walk for PI - New York City
We raise awareness so people know to look for the signs of PI: an infection that is severe, persistent, unusual and/or recurrent. We are walking in cities as large and as densely populated as New York City because we want to be heard. We want to unite our community and show our zebra stripes to the people passing by.
Along with awareness, IDF Walk for PI is a way for people living with PI to meet others living with the same disease. It can be very isolating to have a disease that no one has heard about, and connecting with even one person is enough to make a difference.
2016 IDF Walk for PI - Cleveland
The walks are also a way for people in the community to learn more about their diseases—whether that be a new treatment or product that improves their day-to-day life.
So, when you donate your time and/or money to IDF Walk for PI, you can know right away that your support is going to:
- Critical awareness of chronic, rare diseases that an estimated 250,000 people in the U.S. are diagnosed with while thousands more go undiagnosed.
- Life-long friendships that give members of the PI community the reassurance of knowing that they are not alone.
- Invaluable information that provides individuals and families with the tools to be their own best advocates.
But it doesn’t stop there. The resources that IDF provides are available at no cost to members of the community. We have a range of publications suited for all age groups, and because of the success of the walks, we are now to providing grants to researchers who are working relentlessly to better understand PI and to find a cure.
2017 IDF Walk for PI - Fort Lauderdale
There is strength in numbers. Your support of IDF Walk for PI amplifies our message and supports our efforts to find a cute—all while rocking our zebra stripes.
We have come a long way since 2013, and 2018 we will only get better. We plan to see you there!