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Since You Asked: Question & Answer (November 2017)

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.

Question 1: CVID & Immunotherapies
Question 2: Social Security Disability


Question: Would someone with CVID be able to use the new immunotherapies for certain cancer treatments?

Answer: This is an interesting question, and there is currently little to no experience with this.

If the patient with CVID has normal cell mediated immune function, then this new approach in cancer immune therapy may be feasible. In patients with diminished cell mediated immune function, this approach may not work well since it relies on the immune response of the person to destroy the tumor with modulation by the new immune therapy.

It would be very important for the oncologist to communicate with the patient’s immunologist about the specifics of their CVID diagnosis.


Question: Over the past year my health has been declining and I have been unable to work. I applied for Social Security Disability but was denied. I am not sure they have everything they need, or that they even understand my diagnosis. What can I do?

Answer: We are sorry to hear about your declining health and inability to work. This does happen to some patients with PI, but with your doctors’ support and reaching out to Patient Services Inc. (PSI) for help, you should be able to overturn this decision.

PSI has the Advocating for Chronic Conditions, Entitlements, and Social Services (ACCESS) program. PSI-ACCESS has trained experts who can explain the complicated issues that are involved in proving your entitlement for social security disability. They assist with the application process, and they also have attorneys who can work on your appeal. The best thing about this program is that they understand PI and understand what is required to support your claim.

This is a free service for those with PI. For more information and to consult with an advocate, go to: www.patientservicesinc.org/For-Patients/ACCESS or call 888-700-7010.

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