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One Family’s Experience Participating in IDF Research

January 31, 2019

Check out a new IDF video filmed entirely in Spanish! As the parents of a child living with PI, Carolina and Mauricio explain in this video that further research is needed to improve the diagnosis, treatment and quality of life for current and future generations living with PI, including their young son and others in the community.

Watch as Carolina and Mauricio talk about their family’s journey with PI and the importance of their son’s participation in IDF research. Click here to watch the video. 

By sharing their experiences of living with PI, the family is helping to advance the scientific research of PI. If you're interested in learning more about how to contribute to research, contact us at

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.


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