The Immune Deficiency Foundation (IDF) has been extremely successful in ensuring that all 50 states are now screening for Severe Combined Immunodeficiency (SCID). As technology emerges, there will be more newborn screening tests available for different types of primary immunodeficiency diseases (PI). Building on our previous success, IDF is prepared to advocate for another nationwide newborn screening campaign for other types of PI when such technology is feasible.
The Immune Deficiency Foundation (IDF), founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with PI through advocacy, education, and research. There are approximately 250,000 people who are diagnosed with PI in the U.S., and thousands more go undetected.
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