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About PI CONNECT

IDF PI CONNECT is the Immune Deficiency Foundation’s Patient-Powered Research Network developed for persons with primary immunodeficiency (PI). It connects information entered into IDF ePHR, the electronic personal health record for persons with PI, with the United States Immunodeficiency Network (USIDNET) patient-consented registry, which contains clinical data on several thousand patients with PI.

Contact Us

For more information, contact us at: 
piconnect@primaryimmune.org
800-296-4433 weekdays between 9:00 a.m. and 5:00 p.m. EST