One of the many important functions of the Immune Deficiency Foundation is presenting local education programs throughout the country.
These Local Education Meetings, created and developed by IDF with the help of local volunteers and healthcare professionals, are designed for adults with PI, parents, caregivers, spouses, partners and friends.* They offer invaluable information on comprehensive and varied topics and feature local healthcare professionals who address the treatment and management of primary immunodeficiency diseases.
These one-day meetings are presented on a regional level throughout the year. Healthcare professionals who are experts in managing all phases of living with primary immunodeficiencies present at the meetings. Life management professionals share their knowledge and IDF Volunteers talk about their experiences. A Local Education Meeting might also include specialists addressing insurance reimbursement and accredited nursing professionals speaking on therapy and life management.
In addition to great educational opportunities, IDF Local Education Meetings offer the perfect environment for patients and families to meet and share ideas, and form bonds and friendships that can last a lifetime.
*Can children attend a Local Education Meeting?
Occasionally, a Local Education Meeting includes a youth program. When a Youth Program is available, information will be included on the invitation and Calendar of Events. Children, age 5 to 18, who are diagnosed with a primary immunodeficiency disease or have a family member with this condition, are invited to attend. While parents are attending educational meetings, youth enjoy fun, age-appropriate activities and sessions plus time to meet others in the primary immunodeficiency community. IDF staff, volunteers, medical professionals and educators direct the program. IDF Youth Programs boost spirits, understand primary immunodeficiency disease and connect isolated youth with peers.
When a youth program is not available, parents are welcome to bring their children to a Local Education Meeting. However, the parents will be responsible for the child’s care.
IDF Education Meetings are supported by:
CSL Behring, Grifols, Takeda
Horizon Therapeutics, Octapharma
Bio Products Laboratory, Leadiant Biosciences, Orchard Therapeutics
Accredo Healthcare, Kedrion Biopharma