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The 2021 Rare of the Rare Summit informed, empowered, and provided connections for members of the ultra-rare disease community. The Summit featured diagnosis-specific education sessions and keynotes presented by world-renowned experts in the field. The theme of the event was Diving into Precision Medicine. Precision medicine is defined as "a medical model that proposes the customization of healthcare, with medical decisions, treatments,  practices, or products tailored to a subgroup of patients instead of a one-drug-fits-all model."  

Click here to watch the recordings from the Summit