Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Vaccine

Foundation to follow medical societies' vaccine schedules in light of ACIP hepatitis B decision

December 09, 2025
Hayden Scott as a adult standing in a radiation machine.

PhD student with PI works to improve cancer care

December 04, 2025
Dr. Michael Blaese with Ashanti DeSilva and Cindy Kisik at the 2013 IDF Conference.

The foundation's early years: Dr. Michael Blaese

December 02, 2025
Ig

Gamunex-C, GammaKed lots withdrawn

November 06, 2025
Becky Lenning and family at Christmas

Set boundaries for a safe holiday season

November 04, 2025
Ariell with family

Arielle’s PI journey led her to advocating for the immunocompromised

October 31, 2025
Medicare

Update: Compare costs and coverage with Medicare plans

October 30, 2025
'Compromised' documentary movie graphic

Documentary film earns film festival recognition

October 16, 2025
Katherine Taylor with dogs mural

Muralist with CVID spreads joy through her art

October 15, 2025
woman with mask in er

Preparedness key when visiting emergency department with PI

September 30, 2025
Nurse vaccinating girl

Update: ACIP meeting adds to COVID-19 vaccine confusion

September 24, 2025
Jennifer Harry stands in front of the Capitol

Mother with specific antibody deficiency advocates for vaccines

September 11, 2025
Person typing on a computer

New awareness campaign from Quest Diagnostics

September 05, 2025
Woman on the computer

Immune system self-assessment supports patients seeking a diagnosis

August 26, 2025
shoes on pavement in city

Walk for PI is underway across the United States!

August 15, 2025
NAC nurses Michelle Tran and Katherine Myint_Hpu for main page

Newest NAC members bring geriatric and pediatric expertise

July 15, 2025
medaid card and stethoscope

Statement on H.R. 1: Medicaid cuts threaten vulnerable patients

July 09, 2025
Winkelstein tease

Jerry Winkelstein helped build IDF’s respected reputation

July 02, 2025

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.