Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Person performing lab work

Laboratory tests, patient story critical in diagnosing PI

October 03, 2024
Doctor with X-ray

Address lung disease early with primary immunodeficiency

September 26, 2024
Twins Elliot and Walker Ridge

Mother creates support system for daughter with APDS

September 20, 2024
PI and hepatology

PI can cause difficult-to-diagnose liver disease

September 09, 2024
Langenhop kids sitting on a bench and smiling

Siblings treated for LAD-1 with gene therapy remain healthy

August 30, 2024
Bold Conversations thumbnail with an image of Dr. Nicole Rochester

Bold Conversations: Inclusion in practice at the 2024 PI Conference

August 28, 2024
Frank final

85-year-old with PI celebrates 500th immunoglobulin infusion

August 23, 2024
beach scene

New documentary film released

August 20, 2024
IDF video

Opening session: 2024 PI Conference

August 05, 2024
Dermatology and PI

Conference session explores susceptibility to skin conditions in PI

August 01, 2024
Award winner Taylor Swinehart with Jorey Berry and Brian Rath

Foundation honors PI community supporters at 2024 conference

July 11, 2024
'Compromised' documentary movie graphic

‘Compromised: Life Without Immunity' profiles families affected by PI

June 27, 2024
Laura Zamora and her daughter at the beach thumbnail

Woman with hyper IgE syndrome focuses on the positive

June 14, 2024
film reel with the words Reel Talk as conference logo

Conference features documentary screening

June 13, 2024
Food Allergy

Conference features food allergy and PI session

February 29, 2024
Darcy and friend

Law student with PI lends talent to IDF

December 14, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Woman dancer holding arms out

Dancer with Wiskott-Aldrich syndrome wins Arnold fitness contest

April 28, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.