Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
Child receiving vaccine

Statement regarding the leadership of the U.S. Department of Health and Human Services

December 02, 2024
Man talks to someone via video chat on his phone.

Sustaining the telehealth revolution

November 18, 2024
Colemans

Family navigates both CVID and SAD diagnoses

November 07, 2024
Gloved hand uses tweezers to remove a section of a paper drawing of DNA.

Gene therapy makes headway in PI treatment

October 17, 2024
Headshot of Dr. Emily Harris.

Blaese awardee targets diagnosis and treatment of Evans syndrome

October 10, 2024
fall advocate 2024

Fall 2024 IDF ADVOCATE newsletter

September 25, 2024
Twins Elliot and Walker Ridge

Mother creates support system for daughter with APDS

September 20, 2024
beach scene

New documentary film released

August 20, 2024
'Compromised' documentary movie graphic

‘Compromised: Life Without Immunity' profiles families affected by PI

June 27, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
insurance policy

Insurers block immunoglobulin access using multiple tactics

May 01, 2024
woman and child gardening

Spring 2024 IDF ADVOCATE newsletter

April 16, 2024
Three doctors huddled in a discussion

Primary immunodeficiency education series boosts knowledge

March 26, 2024
IDF publications laid out on a table with blue IDF tablecloth.

Newly diagnosed kit for adults with PI

March 22, 2024
Mom jumping with two kids.

Newly diagnosed kit for kids with PI

March 22, 2024
woman standing in yellow flowers

Physical therapist understands PI as patient and provider

March 21, 2024
Stethoscope lying on top of insurance policy papers

Alternative funding programs hinder access to medications

February 26, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.