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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

woman with mask in er

Preparedness key when visiting emergency department with PI

September 30, 2025
advocate cover close up

Fall 2025 IDF ADVOCATE newsletter

September 24, 2025
Jennifer Harry stands in front of the Capitol

Mother with specific antibody deficiency advocates for vaccines

September 11, 2025
Woman on the computer

Immune system self-assessment supports patients seeking a diagnosis

August 26, 2025
Print Material Fallback

2024 Annual Report

August 15, 2025
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Demystifying advocacy

July 17, 2025
NAC nurses Michelle Tran and Katherine Myint_Hpu for main page

Newest NAC members bring geriatric and pediatric expertise

July 15, 2025
medaid card and stethoscope

Statement on H.R. 1: Medicaid cuts threaten vulnerable patients

July 09, 2025
Little girl ill in bed

Consider increasing Ig therapy for breakthrough infections

May 28, 2025
Amy Johnson at the river

Woman with CVID encourages others to ‘get involved’

May 21, 2025
cropped advocate cover

Spring 2025 IDF ADVOCATE newsletter

April 16, 2025
Thomas and family

Mother details harrowing journey to son's diagnosis and relief of finding the PI community

April 04, 2025
Kelli Williams head shot

Work-life specialist with CVID serves Air Force trainees

March 13, 2025
Advocacy

Statement on federal policy changes: Pledge to protect the immunocompromised

February 21, 2025
Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
Child receiving vaccine

Statement regarding the leadership of the U.S. Department of Health and Human Services

December 02, 2024
Man talks to someone via video chat on his phone.

Sustaining the telehealth revolution

November 18, 2024
Colemans

Family navigates both CVID and SAD diagnoses

November 07, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.