When Audrey and T.J. Duggan visited the pediatrician’s office with their five-day-old baby, Dean, for a weight check in October of 2018, they noticed the nurse was wearing a mask. “She had a mask on and I thought, ‘That’s terrible. What is she doing here if she is sick?’ And then our pediatrician came in with a mask,” said Audrey. At that point
Read MoreWhen a baby is born with severe combined immunodeficiency (SCID), parents are faced with making a major decision about treatment within a short period of time. A baby with SCID has no immune system and infections of any kind can be fatal. Treatment can provide a baby with a functioning immune system and must take place within a baby’s first year
Read MoreMembers of IDF’s SCID Compass program recently earned recognition for their hard work in discerning the needs of parents whose children have severe combined immunodeficiency, or SCID. In early May, Frontiers of Immunology, a scientific journal, published the article “Information and Emotional Support Needs of Families Whose Infant Was Diagnosed
Read MoreIn this Q&A, Dr. John Routes provides insight about COVID-19 for families affected by severe combined immunodefiency, or SCID. Dr. Routes received his Fellowship training in Allergy and Clinical Immunology and Infectious Diseases at National Jewish Health and the University of Colorado School of Medicine, where he was a faculty member for
Read MoreErica Billy and her husband Terrance George watched with worried hearts as their newborn daughter Ava battled constant infections. As the months passed, trips to the pediatrician and rounds of antibiotics became a regular occurrence. Still, Ava’s health deteriorated. Ava became so ill that when she was five months old Erica and Terrance took
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