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SCID News

May 29, 2020
SCID Compass

Duggans celebrate every victory, even small ones, during journey with SCID

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When Audrey and T.J. Duggan visited the pediatrician’s office with their five-day-old baby, Dean, for a weight check in October of 2018, they noticed the nurse was wearing a mask. “She had a mask on and I thought, ‘That’s terrible. What is she doing here if she is sick?’ And then our pediatrician came in with a mask,” said Audrey. At that point

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May 22, 2020
SCID Compass

Treatment in clinical trials an option for some forms of SCID

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When a baby is born with severe combined immunodeficiency (SCID), parents are faced with making a major decision about treatment within a short period of time. A baby with SCID has no immune system and infections of any kind can be fatal. Treatment can provide a baby with a functioning immune system and must take place within a baby’s first year

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May 11, 2020
SCID Compass

Frontiers in Immunology publishes SCID Compass team research article

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Members of IDF’s SCID Compass program recently earned recognition for their hard work in discerning the needs of parents whose children have severe combined immunodeficiency, or SCID. In early May, Frontiers of Immunology, a scientific journal, published the article “Information and Emotional Support Needs of Families Whose Infant Was Diagnosed

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April 24, 2020
SCID Compass

SCID and COVID-19: Considerations for caretakers and persons with SCID

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In this Q&A, Dr. John Routes provides insight about COVID-19 for families affected by severe combined immunodefiency, or SCID. Dr. Routes received his Fellowship training in Allergy and Clinical Immunology and Infectious Diseases at National Jewish Health and the University of Colorado School of Medicine, where he was a faculty member for

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April 20, 2020
SCID Compass

From Struggle to Success: A Family's Story with SCID

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Erica Billy and her husband Terrance George watched with worried hearts as their newborn daughter Ava battled constant infections. As the months passed, trips to the pediatrician and rounds of antibiotics became a regular occurrence. Still, Ava’s health deteriorated. Ava became so ill that when she was five months old Erica and Terrance took

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