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SCID News

January 13, 2021
SCID, SCID Compass

A Closer Look at Newborn Screening

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A few drops of blood from a newborn can reveal so much about the health of a baby. The testing of those blood droplets, along with tests for hearing loss and critical congenital heart conditions, comprise a routine newborn screening. And while the hearing test and heart test are relatively simple evaluations, the blood screening is more complex

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January 08, 2021
SCID, SCID Compass

SCID Treatment Requires Lifelong Follow-up

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While treatment for severe combined immunodeficiency (SCID) can restore a person's immune system, the procedure doesn’t signal an end to coping with this life-threatening PI. A reconstituted immune system may fail, and side effects from the treatment may present lifelong challenges. Those with SCID must monitor their immune system and general

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December 23, 2020
SCID, SCID Compass

Q&A Focuses on Vectors for Gene Therapy

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Orchard Therapeutics recently announced that it would stop using Strimvelis, a gammaretroviral vector-based gene therapy, to treat persons with ADA-SCID (adenosine deaminase deficiency severe combined immunodeficiency). The company made the decision because a patient treated in 2016 with Strimvelis has developed leukemia, which could be

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December 16, 2020
SCID, SCID Compass

What is the PIDTC?

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While the Primary Immune Deficiency Treatment Consortium (PIDTC) is a multi-faceted organization with many moving parts, one thing is certain – its goal is to improve the lives of those with rare, life-threatening immune system disorders. Dr. Jennifer Puck, principal investigator for the PIDTC and professor of pediatrics at University of

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December 15, 2020
SCID, SCID Compass

Documentary focuses on SCID

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Seven-year-old Ava George, who has severe combined immunodeficiency (SCID), and her parents – Erica Billy and Terrance George – are one of several families highlighted in a recently released documentary film series, “Ending Disease: The Stem Cell, Anti-Cancer T-Cell, & Antibody Revolution in Medicine.” “Ending Disease” is a four-part film

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