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SCID News

April 09, 2021
SCID, SCID Compass

Shape the Future of SCID Compass

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Would you like to have a significant impact on the direction of the SCID Compass program? We promise it’s quick and easy and will only take a few minutes of your time. The SCID Compass program recently launched its SCID Demographics and Programming Questionnaire. The survey contains about a dozen questions designed to find out what type of

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March 25, 2021
SCID, SCID Compass

Gene Therapy Research Progresses

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Gene therapy for severe combined immunodeficiency (SCID) – how does it compare to stem cell transplantation, how does it work, and what are the most recent outcomes in clinical trials? In the March SCID Compass Lunch & Learn, Dr. Donald B. Kohn addressed these questions in his presentation, “Gene Therapy for PIDs – Past, Present, Future.”

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March 19, 2021
SCID, SCID Compass

Genetic Counseling and SCID

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Families whose children have severe combined immunodeficiency (SCID) may decide to meet with a genetic counselor. While a genetic counselor can provide information about the genetics of the child’s condition, that’s not the main reason why most families coping with SCID schedule a visit, explained Dr. Barbara Biesecker in a recent IDF podcast, “

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March 05, 2021
SCID, SCID Compass

SCID Compass Summit set for April 29-30

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The SCID Compass program is proud to announce the third annual SCID Compass Summit, a stakeholder meeting for all individuals impacted by SCID. The 2021 SCID Compass Summit offers a broad range of topics that appeal to a wide audience, ranging from parents to health providers. Offered on a virtual platform, the SCID Compass Summit takes place

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February 24, 2021
SCID, SCID Compass

Video Focuses on Navigating Hospital Stay

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What are some questions you should ask when considering a bone marrow transplant (BMT) for your baby with severe combined immunodeficiency (SCID)? A new video posted to the SCID Compass website provides parents with a brief overview of topics to explore when researching transplant centers. Created by SCID Compass partner Genetic Alliance

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