Those parents feeling overwhelmed after learning their baby has severe combined immunodeficiency (SCID), a life-threatening PI in which a baby is born without a functioning immune system, may find some comfort and clarity by watching a simple but informative video describing the process of SCID diagnosis. Posted on the SCID Compass website, the
Read MoreIn an effort to reach a greater number of families affected by severe combined immunodeficiency (SCID), the Immune Deficiency Foundation’s (IDF) SCID Compass program has launched a Spanish version of its website. Designed to provide education and support to families of children diagnosed with SCID, the program has a goal of reaching
Read MoreAs an intern in pediatrics at the University of California, San Francisco (USCF) in 1975, Dr. Mort Cowan provided care for his first patient with severe combined immunodeficiency (SCID). Seven years later, he started the bone marrow transplant program at UCSF to treat persons with SCID. Today, Dr. Cowan is a pediatric immunologist, Emeritus
Read MoreAre you interested in learning more about gene therapy or stem cell transplant as treatments for SCID? Would you like to be better informed about genetic counseling as it relates to SCID? How much do you know about the importance of newborn screening? The upcoming monthly SCID Compass Lunch & Learn series will answer these questions and
Read MoreThis blog post is part of IDF’s Stories Project, designed to provide a venue for those living with PI to share their experiences. Some are first-person accounts, others are written by IDF staff. If you have a story you’d like to share, email us at stories@primaryimmune.org. In this Stories Project blog, Michelle Lamonica describes her fear,
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