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SCID News

June 29, 2020
SCID Compass

Newborn Screening: What Parents Need to Know

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Babies can look healthy at birth and still have a serious health condition, which is why newborn screening tests are completed before discharge from the hospital. A few drops of blood, taken from a baby’s heel, are tested for a number of disorders including a potentially fatal disorder of the immune system known as Severe Combined Immunodeficiency

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June 09, 2020
SCID Compass

SCID Compass invites families to inaugural Lunch & Learn Forum

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Families and individuals impacted by severe combined immunodeficiency (SCID) are invited to tune in for the first-ever SCID Compass Lunch & Learn Forum. The virtual Forum takes place on Tuesday, June 23 from 12 to 1 p.m. EST and is an educational outreach effort by IDF’s SCID Compass program. Presented as a webinar, the Forum features

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May 29, 2020
SCID Compass

Duggans celebrate every victory, even small ones, during journey with SCID

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When Audrey and T.J. Duggan visited the pediatrician’s office with their five-day-old baby, Dean, for a weight check in October of 2018, they noticed the nurse was wearing a mask. “She had a mask on and I thought, ‘That’s terrible. What is she doing here if she is sick?’ And then our pediatrician came in with a mask,” said Audrey. At that point

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May 22, 2020
SCID Compass

Treatment in clinical trials an option for some forms of SCID

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When a baby is born with severe combined immunodeficiency (SCID), parents are faced with making a major decision about treatment within a short period of time. A baby with SCID has no immune system and infections of any kind can be fatal. Treatment can provide a baby with a functioning immune system and must take place within a baby’s first year

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May 11, 2020
SCID Compass

Frontiers in Immunology publishes SCID Compass team research article

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Members of IDF’s SCID Compass program recently earned recognition for their hard work in discerning the needs of parents whose children have severe combined immunodeficiency, or SCID. In early May, Frontiers of Immunology, a scientific journal, published the article “Information and Emotional Support Needs of Families Whose Infant Was Diagnosed

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