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SCID News

SCID News

February 11, 2020
SCID, SCID Compass

SCID requires lifelong monitoring of immune system

POSTED BY:

As an organization dedicated to supporting people with primary immunodeficiencies (PI), the Immune Deficiency Foundation (IDF) believes that persons with severe combined immunodeficiency (SCID) should receive lifelong follow-up care after treatment for the disorder. A person with SCID is born without a functioning immune system, making the

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January 24, 2020
SCID, SCID Compass

Gene Therapy for SCID: Q&A with Dr. Sung-Yun Pai

POSTED BY:

Dr. Sung-Yun Pai is co-director of the Gene Therapy Program, senior physician, and associate professor of pediatrics at the Harvard Medical School. Her laboratory focuses on the study of disorders of human T and B cell development and function, and treatment of these disorders by allogeneic hematopoietic cell transplantation and gene therapy.

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January 17, 2020
Advocacy, SCID, SCID Compass

Call to Action - Save the Nation’s Newborn Screening Advisory Committee

POSTED BY: AFreestone

Every year, more than 12,000 infants are born with health conditions, such as severe combined immunodeficiency (SCID), that are not apparent at birth, but can cause serious health problems or even death if not treated early. And every year, these babies receive timely life-saving or life-altering care because of newborn screening. Newborn

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July 18, 2019
Medicare, SCID Compass

More PI Diagnoses Covered for Home Ig Replacement Therapy under Medicare Part B

POSTED BY: AFreestone

Over the past year, the Immune Deficiency Foundation (IDF) has worked with the Centers for Medicare and Medicaid Services (CMS) to expand access to immunoglobulin (Ig) replacement therapy for Medicare beneficiaries. In particular, IDF has advocated to expand Medicare Part B coverage for in-home Ig replacement therapy to include more PI diagnoses.

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February 15, 2019
SCID, SCID Compass

SCID Compass – An Educational Program of the Immune Deficiency Foundation

POSTED BY: rdelaney

SCID Compass, an educational program of the Immune Deficiency Foundation (IDF), seeks to improve outcomes for infants with Severe Combined Immunodeficiency (SCID) by enhancing access to and use of educational resources, providing linkages to critical services for patients and families, and developing protocols and mechanisms for long-term follow

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