Would you like to have a significant impact on the direction of the SCID Compass program? We promise it’s quick and easy and will only take a few minutes of your time. The SCID Compass program recently launched its SCID Demographics and Programming Questionnaire. The survey contains about a dozen questions designed to find out what type of
Read MoreGene therapy for severe combined immunodeficiency (SCID) – how does it compare to stem cell transplantation, how does it work, and what are the most recent outcomes in clinical trials? In the March SCID Compass Lunch & Learn, Dr. Donald B. Kohn addressed these questions in his presentation, “Gene Therapy for PIDs – Past, Present, Future.”
Read MoreFamilies whose children have severe combined immunodeficiency (SCID) may decide to meet with a genetic counselor. While a genetic counselor can provide information about the genetics of the child’s condition, that’s not the main reason why most families coping with SCID schedule a visit, explained Dr. Barbara Biesecker in a recent IDF podcast, “
Read MoreThe SCID Compass program is proud to announce the third annual SCID Compass Summit, a stakeholder meeting for all individuals impacted by SCID. The 2021 SCID Compass Summit offers a broad range of topics that appeal to a wide audience, ranging from parents to health providers. Offered on a virtual platform, the SCID Compass Summit takes place
Read MoreWhat are some questions you should ask when considering a bone marrow transplant (BMT) for your baby with severe combined immunodeficiency (SCID)? A new video posted to the SCID Compass website provides parents with a brief overview of topics to explore when researching transplant centers. Created by SCID Compass partner Genetic Alliance
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