Babies can look healthy at birth and still have a serious health condition, which is why newborn screening tests are completed before discharge from the hospital. A few drops of blood, taken from a baby’s heel, are tested for a number of disorders including a potentially fatal disorder of the immune system known as Severe Combined Immunodeficiency
Read MoreFamilies and individuals impacted by severe combined immunodeficiency (SCID) are invited to tune in for the first-ever SCID Compass Lunch & Learn Forum. The virtual Forum takes place on Tuesday, June 23 from 12 to 1 p.m. EST and is an educational outreach effort by IDF’s SCID Compass program. Presented as a webinar, the Forum features
Read MoreWhen Audrey and T.J. Duggan visited the pediatrician’s office with their five-day-old baby, Dean, for a weight check in October of 2018, they noticed the nurse was wearing a mask. “She had a mask on and I thought, ‘That’s terrible. What is she doing here if she is sick?’ And then our pediatrician came in with a mask,” said Audrey. At that point
Read MoreWhen a baby is born with severe combined immunodeficiency (SCID), parents are faced with making a major decision about treatment within a short period of time. A baby with SCID has no immune system and infections of any kind can be fatal. Treatment can provide a baby with a functioning immune system and must take place within a baby’s first year
Read MoreMembers of IDF’s SCID Compass program recently earned recognition for their hard work in discerning the needs of parents whose children have severe combined immunodeficiency, or SCID. In early May, Frontiers of Immunology, a scientific journal, published the article “Information and Emotional Support Needs of Families Whose Infant Was Diagnosed
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