Families and individuals impacted by severe combined immunodeficiency (SCID) are invited to tune in for the first-ever SCID Compass Lunch & Learn Forum. The virtual Forum takes place on Tuesday, June 23 from 12 to 1 p.m. EST and is an educational outreach effort by IDF’s SCID Compass program.
Presented as a webinar, the Forum features information on SCID Compass and a question and answer portion with Dr. John Routes, a pediatric allergist/immunologist from the Children’s Hospital of Wisconsin, Medical College of Wisconsin and the clinical lead for the SCID Compass program. A specialist in SCID, Dr. Routes will address topics affecting people at all levels of diagnosis and recovery from SCID. Viewers can expect him to answer questions about SCID treatments, lifelong follow-up care, and the intersection of COVID-19 and SCID.
Registration for the Forum is required by Sunday, June 21, and space is limited. There is no cost to participate. Register here.
To learn more information about the Forum or to submit a question, contact firstname.lastname@example.org or 800-296-4433.
SCID Compass is an educational program of IDF which seeks to improve outcomes for infants with SCID, a set of genetic disorders which results in a lack of an immune system and is usually fatal unless treated within the child’s first year. SCID Compass enhances access to and use of educational resources, provides connections to critical services for patients and families, and develops protocols and mechanisms for long-term follow-up for infants identified with SCID through newborn screening. SCID Compass is made possible by a two-year, Health Resources and Services Administration grant.