This flyer was designed to be a quick overview of SCID types and treatments for families of newly diagnosed children. Click here to download.
This brochure provides information about experiences of parents with newly diagnosed children. It highlights challenges faced by families and suggestions for what providers can do to help parents during this critical time. The information is based on interviews with parents of children with SCID. Click here to download.
This guide includes Hematopoietic Stem Cell Transplantation (HSCT) approaches that could potentially benefit patients with several types of primary immunodeficiency diseases (PI). Subsequent chapters provide more details as to how a patient is prepared for a transplant, what the transplant experience is like, and what life can be like after a transplant. Click here to download.
This flyer describes the SCID Compass program, offers answers to frequently asked questions about SCID, and provides a SCID Fact sheet for quick reference. Click here to download.
IDF highly recommends annual lifelong medical evaluation of all persons with SCID – regardless of age, treatment type, or treatment timeline – in order to ensure their immune systems are functioning normally and to identify any side effects from treatment. Click here to read IDF's recommendations.