You are here

SCID News

SCID News

June 30, 2022
SCID, SCID Compass

Congenital athymia diagnosis begins at newborn screening

POSTED BY:

Update While babies born with either congenital athymia or severe combined immunodeficiency (SCID) both lack T cells, the causes of the two primary immunodeficiency disorders differ significantly, so it’s important to determine the correct diagnosis in order to move forward with the appropriate treatment. This insight into congenital athymia is

Read More
June 13, 2022
SCID, SCID Compass

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

POSTED BY:

  Cindy Cutshall-Kisik visits youth of all ages – from preschool to college – to share the importance of addressing mental health needs. She tells them not to be ashamed if they feel sad or anxious, that’s it’s normal, and there are people in the community who want to help. Don’t let your problems fester, and don’t be embarrassed to ask for

Read More
June 03, 2022
SCID, SCID Compass

Registration open for the SCID Compass Summit

POSTED BY:

  Looking for the latest information pertaining to severe combined immunodeficiency (SCID)? Then register for the upcoming fourth annual SCID Compass Summit. Set for June 23-24, from 11 a.m. to 3 p.m. each day, this two-day virtual event is free and offers an opportunity for connection, learning, and sharing of ideas about SCID. The Immune

Read More
May 13, 2022
SCID, SCID Compass

SCID advocate devotes herself to helping parents navigate medical world

POSTED BY:

When Barb Ballard gave birth to her son Ray in 1994, doctors provided him with newborn screening. The screening revealed nothing unusual, and, at the time, Ballard considered the screening “a blessing of good genetic health.” Ten months later, Ray lay in the pediatric intensive care unit on a ventilator struggling with pneumocystis (PCP)

Read More
May 09, 2022
SCID, SCID Compass

SCID survey seeks feedback on long-term care needs

POSTED BY:

If you’re an adult diagnosed with severe combined immunodeficiency (SCID), or a parent or caregiver of a child with SCID, researchers at the University of California San Francisco (UCSF) want your input for the development of a long-term follow-up program designed to aid individuals and families coping with a SCID diagnosis. The UCSF Needs

Read More