The Immune Deficiency Foundation (IDF) provides ongoing advocacy to ensure that all infants in the United States have access to Severe Combined Immunodeficiency (SCID) newborn screening and, when needed, further diagnostic testing and treatment for all forms of SCID. IDF continues to work to remove any barriers to screening, diagnosis and treatment of SCID throughout the country including those in rural and underserved communities. Efforts may include addressing legislation, state policies and regulations, as well as challenging private insurance and hospital system rules to ensure all infants are fully screened and all babies found to have SCID receive the care and treatment they need.
Through the SCID Compass, a program of IDF, we can identify and address any policy barriers found in underserved and rural communities to ensure that babies are appropriately screened and treated for SCID. Click here to learn more about SCID Compass.