IDF advocates for policies which allow patients ready access to safe and quality care, in the site of care that is most appropriate, with the treatment best recommended by providers with a minimization of cost to the patient.
With all 50 states now screening for Severe Combined Immunodeficiency (SCID), IDF advocates for policies that ensure universal screening is maintained nationwide, support emerging opportunities to screen for other types of PI, and work to remove barriers to the use and development of accurate diagnostic tools.
IDF advocates for policies that ensure the patient voice is represented in health policy debates. We work to ensure that state legislatures understand the importance of universal vaccinations and of addressing the overuse of antibiotics to the PI community.