The IDF Patient Education Meeting in Tampa, FL April 9th was a wonderful success! Sixty patients and family members attended the meeting at the Doubletree Hotel to learn more about primary immunodeficiency diseases and meet with other affected individuals. Special thanks and gratitude go to IDF’s amazing volunteers who put so much effort into making the meeting a triumph: Laura Anderson, Heather Smith, and Ed and Pat Ganley!
The meeting featured local experts in immunology addressing the treatment and management of primary immunodeficiency diseases with presentations and question and answer periods. Speakers and topics included:
Robert Eanett, MD, Watson Clinic South—How to Talk with your Doctor
Elena Perez, MD, PhD, University of Southern Florida, College of Medicine and All Children’s Hospital—General Care for Persons with Primary Immunodeficiency Disease
Lynne Szott, RN, CSL Behring—The Affordable Care Act: Current Reform Measures that Help Persons with Chronis Conditions
Heather Smith, Co-founder for SCID, Angels for Life Foundation—Newborn Screening for SCID: A Parent’s Story
The attendees were very positive about the meeting and felt like they learned a lot about managing their diseases. One attendee stated her feelings about the meeting simply and succinctly on her evaluation, “Excellent! Excellent! Excellent!”
Please join us at an IDF Patient Education Meeting or other great IDF event in your area! Check out the IDF Calendar of Events for details.
Please let IDF know if you are involved in any Community in Action activities in your community. Comment below or fill out the Contact form at the top of the page to have your story featured in a future blog post. To learn more about ways you can get involved, please visit the website at www.primaryimmune.org .