Learn about the importance of your personal story as a member of the PI community and how to best share it for advocacy purposes.
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Learn about IDF’s successful decade-long campaign for universal SCID newborn screening across the country, as well as IDF’s current work to ensure that every family facing a SCID diagnosis has access to the resources, care, and support they need and deserve.
Learn about the importance of local advocacy for the PI community and how you can get involved in your home state.
Learn about the 2018 election’s impact on Washington, D.C., what that might mean for healthcare, and what you can do to get involved in advocating for the PI community.
What are co-pay accumulator programs and how do they affect the cost of your prescriptions?
Hear Melanie discuss challenges she’s faced affording her treatments and learn about co-pay choice legislation and how it addresses the barrier of high out-of-pocket costs by providing insurance options with predictable co-pays to patients.
Learn about the Medicare IVIG Access Demonstration Project and why it is important for Congress to make this a permanent benefit for Medicare beneficiaries with rare, chronic diseases, like PI.
Jan discusses how the Medicare IVIG Access Demonstration Project changed her infusion experience for the better. Learn how you can apply to participate in the Demonstration as well. Learn more about the Demonstration here: https://youtu.be/kDrWa2-cMd8
Learn about the patient protections IDF advocates for as Congress continues its efforts to repeal and replace the Affordable Care Act.
Barbara discusses how the upcoming sunset date for the Medicare SCIG Home Infusion Benefit will impact access to her life-saving immunoglobulin therapy.