IDF's Rare of the Rare session, "PI Regulatory Disorders (APDS, IPEX, FOXP3, CTAL4, LRBA, STAT1 & STAT3) & Unspecified PI Education Session" was presented by Alice Chan, MD, Ph.D. on October 1, 2021.
IDF's Rare of the Rare session, "NEMO Education Session" was presented by Eric Hanson, MD on October 1, 2021.
IDF's Rare of the Rare session, "HLH Education Session" was presented by Ashish R. Kumar, MD, Ph.D. on October 1, 2021.
IDF's Rare of the Rare session, "Good's Syndrome Education Session" was presented by Charlotte Cunningham-Rundles, MD on October 1, 2021.
IDF's Rare of the Rare session, "Congenital Athymia Education Session" was presented by Megan Cooper, MD, Ph.D. on October 1, 2021.
IDF's Rare of the Rare session, "Opening Session: Navigating the Ultra-rare Landscape: The Relevance of Precision Medicine" was presented by Yvette Shorten, IDF Board of Trustees Member, and Joud Hajjar, MD, MS on October 1, 2021.
IDF's Rare of the Rare session, "Swimming Upstream: Addressing Payer Challenges & Ensuring Access to Genetic Testing" was presented by Manish Butte, MD, Ph.D., Abraham Yunis, MBA, and Lynn Albizo, JD on October 1, 2021.
IDF's Rare of the Rare session, "Clinical Research Trials and You" was presented by Jason Bradt, MD, Ali Smyth, Ph.D., Elizabeth Garabedian, RN, MSLS, and Christopher Scalchunes, MPH on October 2, 2021.
Curious about the best way to raise funds and awareness for PI? Have a hard time or feel uncomfortable asking for donations? Need help fundraising? Join IDF’s Development Team for a special workshop that will go over some of our favorite fundraising tips.
As the Coronavirus progresses, the COVID-19 vaccine continues to be our best form of protection against the deadly virus, especially for those living with primary immunodeficiency or PI. The CDC recommends all individuals who are 12 years old and older receive a COVID-19 vaccine. In today’s episode, we will be discussing the importance of the COVID-19 vaccine, specifically for teens, with a panel of Teen Leaders.
