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A Zebra Tale

An illustrated audio storybook written for children-young and old-living with primary immunodeficiency diseases (PI) and their families to provide hope and encouragement.

Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode

Common Variable Immune Deficiency, or CVID, is just one of the more than 400 primary immunodeficiencies, characterized by low levels of serum immunoglobulins and loss of antibodies, which causes an increased susceptibility to infection. While it is considered “common” compared to other immune deficiencies, questions still remain about the diagnosis, treatment, and well-being of people living with CVID. In this podcast episode, we will be discussing the symptoms, treatments, and health management associated with CVID with our guest, Charlotte Cunningham-Rundles, MD, Ph.D.

My Friend, Fred Rogers

Dr. Mary Manz Simon, a member of the PI community, shares her connection with beloved late TV figure, Fred Rogers from "Mister Rogers' Neighborhood." As long time pen-pals, Dr. Mary likes to practice Rogers' compassion and good nature, especially during her tough times struggling with CVID.

Rare of the Rare Summit 2020 Promo

Are you interested in being a leader in the rare disease community? The Rare of the Rare Summit is a FREE opportunity for those affected by these "rare of the rare" diagnoses to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. This summit will be held June 19-21, 2020 at the Bethesda Marriott in Bethesda, MD.


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