A Zebra Tale
An illustrated audio storybook written for children-young and old-living with primary immunodeficiency diseases (PI) and their families to provide hope and encouragement.
You are here
IDF Channel
El cuento de una cebra
Un libro de cuentos en audio ilustrado escrito para niños, jóvenes y ancianos, con enfermedades de inmunodeficiencia primaria (IP) y sus familias para brindar esperanza y aliento.
COVID-19 Update, May 8, 2020
May 8, 2020 COVID-19 update from IDF Physician Advisory Committee.
COVID-19 Update, April 10, 2020
April 10, 2020 COVID-19 update from IDF Physician Advisory Committee.
Common Variable Immune Deficiency (CVID) - A Diagnosis Specific Episode
Common Variable Immune Deficiency, or CVID, is just one of the more than 400 primary immunodeficiencies, characterized by low levels of serum immunoglobulins and loss of antibodies, which causes an increased susceptibility to infection. While it is considered “common” compared to other immune deficiencies, questions still remain about the diagnosis, treatment, and well-being of people living with CVID. In this podcast episode, we will be discussing the symptoms, treatments, and health management associated with CVID with our guest, Charlotte Cunningham-Rundles, MD, Ph.D.
COVID-19 Update, March 18, 2020
March 18, 2020 COVID-19 update from IDF Physician Advisory Committee.
Resources:
Why do we touch our face? Tips for breaking the habit: https://www.youtube.com/watch?v=2sxI7s8p99o
Four tips to stop touching your face: https://www.nytimes.com/2020/03/05/health/stop-touching-your-face-corona...
COVID-19 Update, March 10, 2020
March 10, 2020 COVID-19 update from IDF Physician Advisory Committee.
Resources: Henry the hand website. Training by Dr. Will Sawyer to avoid touching your face. Face shield training device: www.henrythehand.com
New York Times tips to avoid touching your face: www.nytimes.com/2020/03/05/health/stop-touching-your-face-coronavirus.html
COVID-19 Update, March 3, 2020
March 3, 2020 COVID-19 update from IDF Physician Advisory Committee.
Resources for COVID-19:
Daily update on international infections. Text and map WHO COVID-19 situation reports: https://www.who.int/docs/default-source/coronaviruse/situation-reports/2...
My Friend, Fred Rogers
Dr. Mary Manz Simon, a member of the PI community, shares her connection with beloved late TV figure, Fred Rogers from "Mister Rogers' Neighborhood." As long time pen-pals, Dr. Mary likes to practice Rogers' compassion and good nature, especially during her tough times struggling with CVID.
Rare of the Rare Summit 2020 Promo
Are you interested in being a leader in the rare disease community? The Rare of the Rare Summit is a FREE opportunity for those affected by these "rare of the rare" diagnoses to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. This summit will be held June 19-21, 2020 at the Bethesda Marriott in Bethesda, MD.
Pages
