Dr. Mary Manz Simon, a member of the PI community, shares her connection with beloved late TV figure, Fred Rogers from "Mister Rogers' Neighborhood." As long time pen-pals, Dr. Mary likes to practice Rogers' compassion and good nature, especially during her tough times struggling with CVID.
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Are you interested in being a leader in the rare disease community? The Rare of the Rare Summit is a FREE opportunity for those affected by these "rare of the rare" diagnoses to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. This summit will be held June 19-21, 2020 at the Bethesda Marriott in Bethesda, MD.
The Immune Deficiency Foundation (IDF) would like to thank our entire PI community for a wonderful 2019! We look forward to seeing you in 2020. Have a happy and healthy holiday season!
With the support of his brother, Cameron, who is living with Common Variable Immune Deficiency (CVID), Max decided to climb Mount Kilimanjaro in Tanzania to raise awareness for PI. As part of this adventure, Max donated over $4,000 to IDF in honor of his brother.
The IDF 2019 National Conference, held in National Harbor, MD, June 20-22, 2019, brought together more than 1,300 attendees from 42 states, Washington, DC, and 8 countries. Thank you to the attendees, volunteers, presenters, supporters, exhibitors and all who helped make the IDF 2019 National Conference a success! We will see you at the IDF 2021 National Conference held June 24-26, 2021 in Dallas, TX at the Sheraton Dallas Hotel.
John G. Boyle, IDF President & CEO, announces the location of the IDF 2021 National Conference, as well as introduces a special TZ dance to be displayed at the IDF Walks in 2019!
Marcia Boyle, IDF Founder, presented Elizabeth K. Garabedian (Buffy), RN, MSLS, Vice Chair of the IDF Nurse Advisory Committee, with the first Marcia Boyle Service Award at the IDF 2019 National Conference Zebra Gala. The IDF Zebra Gala is supported by CSL Behring.
Dr. Rebecca Buckley, Chair of the IDF Physician Advisory Committee, presented Jean-Laurent Casanova, MD, Ph.D., with the IDF Scientific Achievement Award at the IDF 2019 National Conference Zebra Gala. Dr. Casanova was not present, yet we hope to give him his award in person. The IDF Zebra Gala is supported by CSL Behring.
William Blouin, Chair of the IDF Nurse Advisory Committee, presented Kristin Epland, FNP-C, Member of the IDF Nurse Advisory Committee, with the IDF Art of Nursing Award at the IDF 2019 National Conference Zebra Gala. The IDF Zebra Gala is supported by CSL Behring.
The IDF Supporter Awards were presented by Marcia Boyle, Founder of IDF, at the IDF 2019 National Conference Zebra Gala on June 21, 2019. The IDF Zebra Gala is supported by CSL Behring.