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My Friend, Fred Rogers

Dr. Mary Manz Simon, a member of the PI community, shares her connection with beloved late TV figure, Fred Rogers from "Mister Rogers' Neighborhood." As long time pen-pals, Dr. Mary likes to practice Rogers' compassion and good nature, especially during her tough times struggling with CVID.

Rare of the Rare Summit 2020 Promo

Are you interested in being a leader in the rare disease community? The Rare of the Rare Summit is a FREE opportunity for those affected by these "rare of the rare" diagnoses to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. This summit will be held June 19-21, 2020 at the Bethesda Marriott in Bethesda, MD.

IDF 2019 National Conference Wrap-up

The IDF 2019 National Conference, held in National Harbor, MD, June 20-22, 2019, brought together more than 1,300 attendees from 42 states, Washington, DC, and 8 countries. Thank you to the attendees, volunteers, presenters, supporters, exhibitors and all who helped make the IDF 2019 National Conference a success! We will see you at the IDF 2021 National Conference held June 24-26, 2021 in Dallas, TX at the Sheraton Dallas Hotel.

IDF 2019 National Conference Zebra Gala - Scientific Achievement Award, Dr. Jean-Laurent Casanova

Dr. Rebecca Buckley, Chair of the IDF Physician Advisory Committee, presented Jean-Laurent Casanova, MD, Ph.D., with the IDF Scientific Achievement Award at the IDF 2019 National Conference Zebra Gala. Dr. Casanova was not present, yet we hope to give him his award in person. The IDF Zebra Gala is supported by CSL Behring.


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