IDF's National Summit session, "COVID-19: Where Are We? Where Are We Going?" was presented by Kathleen Sullivan, MD, PhD on November 6, 2020.
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IDF's National Summit Opening Session was presented by IDF President & CEO, John G. Boyle and IDF Board of Trustees Chair, Dr. John Seymour on November 6, 2020.
During the fall and winter months, as we begin to bundle up for the cold weather, we must also remember it’s time to protect ourselves during flu season. For people living with a primary immunodeficiency, the flu can cause severe complications, beyond the common symptoms, such as pneumonia or bronchitis. By taking preventative measures, such as vaccination, members of the PI community can have a decreased chance of being exposed. Listen as we discuss navigating flu season with PJ Maglione, MD.
IDF's Rare of the Rare session, "Diagnosis Specific: WHIM Syndrome" was presented by Philip Murphy, MD on September 26, 2020.
Many individuals living with PI rely on immunoglobulin replacement therapy (or Ig) to provide the antibodies that we don’t make on our own. Those antibodies are necessary to fight off bacteria and viruses. These replacement antibodies come from human plasma. In this episode, we will be discussing the importance of plasma with Amy Efantis, the President & CEO of the Plasma Protein Therapeutics Association or PPTA, an organization representing more than 850 human plasma collection centers in North America and Europe.
IDF's Rare of the Rare session, "Keynote & Closing of the Summit: Gene Therapy for Primary Immunodeficiency Past, Present, Future" was presented by Don Kohn, MD and IDF President & CEO, John G. Boyle on September 27, 2020.
IDF's Rare of the Rare session, "From Community Benefits to Community Empowerment: Roundtable Discussion" was presented by IDF Staff: Lynn Albizo, JD, Christopher Scalchunes, MPA, & Terry Scott, CAVS on September 27, 2020.
IDF's Rare of the Rare session, "Keynote: Current and Novel Approaches to Improve Safety & Efficacy of Transplant for Patients with Primary Immunodeficiencies " was presented by Harry Malech, MD on September 26, 2020.
IDF's Rare of the Rare session, "Diagnosis Specific: NEMO Deficiency" was presented by Jennifer Leiding, MD on September 26, 2020.
IDF's Rare of the Rare session, "Diagnosis Specific: Wiskott Aldrich Syndrome (WAS)" was presented by Hans Ochs, MD on September 26, 2020.