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We’re back! IDF 2011 Advocacy day–May 26!


Rep. Kevin Brady with IDF volunteers Jerry Shorten, Karissa Marson, and Carol Ann Demaret at IDF 2011 Advocacy Day

IDF is on Capitol Hill once again for the IDF 2011 Advocacy Day! We have 74 patients and family members from 26 different states making the rounds to their Congressional offices today. Their mission – to bring awareness to primary immunodeficiency diseases and ask their Members of Congress to solve the problems of access to IVIG for Medicare beneficiaries with primary immunodeficiency diseases by supporting HR 1845/S 960, the Medicare IVIG Access Act.

Yesterday, the volunteers participated in a training for their meetings and were treated to some words from IDF’s legislative champion, Congressman Kevin Brady (TX-8) who is the lead sponsor of the legislation in the House.  This year for the first time, IDF also held a training program specifically for teens and young adults called Raise Your Voice!  Fourteen young people from 11 states participated in the training and are accompanying their parents on the Hill today.  These teens and young adults are just some of the many fresh faces that are participating in Advocacy Day this year.  With about 30 individuals participating in Advocacy Day for the first time, many Members of Congress and their staff will be hearing about primary immunodeficiency diseases for the first time today!

We are so thrilled to be putting on this event again this year, and we are extremely confident that many of these meetings will translate into co-sponsorship and support of both our house and Senate bills, HR 1845/S960 the Medicare IVIG Access Act!

Below, we hope that participants of the event will share their experiences with live updates from the Capitol.  So, how is your day going?

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Comments

The Iowa and Kansas teams ran in to Rep Matsui in the halls and got to thank her for cosponsoring HR 1845. Off to a GREAT START!!!!

Congressman Michael Fitzpatrick of Bucks County, PA has comitted to co-sponsor HR1845. Thanks so much Congressman Fitzpatrick!!!!!!!!

Met Amy Klobuchar this morning, and had a great meeting with one of her staffers! So far so good!

The Texas group is having a great time on Capital Hill. The first 2 meetings have gone great!!!

i am here supporting my brother. Having a awesome time and can't wait for the rest of the meetings!!

Rep. McGovern is on board! Way to go. There are still a lot of meetings to go!

Congresswoman Tsongas pledged to co-sponsor HR 1845!! Way to go MA!!

What a fabulous day all around! All told, we heard from about 7 Members of Congress definitely that they would support the legislation! We expect to hear from quite a few more in the next week or so!