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Home / IDF Advocacy Center

IDF Advocacy Center

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Our Advocacy Priorities

Health Care Reform Law Provisions & Implementation
IDF will periodically post status reports, links to other websites, and explanations of various provisions of the new health care reform law as well as implementation reports.

Medicare Patient IVIG Access Act
Many members of the primary immunodeficiency community experience delays in and denial of treatment due to insufficient Medicare reimbursement.

SCID Newborn Screening
Get the facts about the SCID Newborn Screening Campaign with the Newborn Screening toolkit to become a successful advocate.

Health Insurance – lg Guidelines
IDF is working to ensure that health insurers fulfill their obligation to cover treatment of primary immunodeficiency diseases.

Insurers are Not Doctors is the campaign against harmful insurance formularies for immunoglobulin replacement therapy. Please inform IDF if your insurance plan is instituting a formulary for Ig therapy.

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IDF Action Updates

A-PLUS EHB Comments FINAL 1-30-2012
1-31-2012

IDF and APLUS letter to Debt Supercommittee Oct 2011
10-27-2011

IDF Essential Benefits Testimony to HHS 10-20-2011
10-27-2011

Pharmaceutical Fee Letter of Support 8-9-2011
8-11-2011

READ MORE

Our Featured Stories

Journal of American Medical Association Article on IVIG Legislation Featured in the July 13, 2011 edition

Policy Matters Blog: ‘Tis the Season
12-13-2011 4:41 pm

While hunters go after various game this time of year, it seems that some health insurance companies go after vulnerable patients – especially those with rare and chronic diseases.  This season patients with primary immunodeficiency diseases who are members of Coventry Health Care and its subsidiaries in Pennsylvania, Missouri and Illinois seem to be the [...]

IDF Advocacy Center

  • Healthcare Reform
  • IDF Advocacy Center Activity
  • IVIG Reimbursement
  • Health Insurance – Ig Guidelines
  • Action Alerts
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