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Our Advocacy Priorities
Health Care Reform Law Provisions & Implementation
IDF will periodically post status reports, links to other websites, and explanations of various provisions of the new health care reform law as well as implementation reports.
Medicare Patient IVIG Access Act
Many members of the primary immunodeficiency community experience delays in and denial of treatment due to insufficient Medicare reimbursement.
SCID Newborn Screening
Get the facts about the SCID Newborn Screening Campaign with the Newborn Screening toolkit to become a successful advocate.
Health Insurance – lg Guidelines
IDF is working to ensure that health insurers fulfill their obligation to cover treatment of primary immunodeficiency diseases.
Insurers are Not Doctors is the campaign against harmful insurance formularies for immunoglobulin replacement therapy. Please inform IDF if your insurance plan is instituting a formulary for Ig therapy.
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IDF Action Updates
Our Featured Stories
Journal of American Medical Association Article on IVIG Legislation Featured in the July 13, 2011 edition
While hunters go after various game this time of year, it seems that some health insurance companies go after vulnerable patients – especially those with rare and chronic diseases. This season patients with primary immunodeficiency diseases who are members of Coventry Health Care and its subsidiaries in Pennsylvania, Missouri and Illinois seem to be the [...]


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