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Health Care Reform Law Provisions & Implementation IDF will periodically post status reports, links to other websites, and explanations of various provisions of the new health care reform law as well as implementation reports. Check out the NEW AMERICAN PLASMA USERS WEBINAR – Health Reform in Your Backyard

Medicare Patient IVIG Access Act
Many members of the primary immunodeficiency community experience delays in and denial of treatment due to insufficient Medicare reimbursement.

SCID Newborn Screening
Get the facts about the SCID Newborn Screening Campaign with the Newborn Screening toolkit to become a successful advocate.

Health Insurance – lg Guidelines
IDF is working to ensure that health insurers fulfill their obligation to cover treatment of primary immunodeficiency diseases.

Insurers are Not Doctors is the campaign against harmful insurance formularies for immunoglobulin replacement therapy. Please inform IDF if your insurance plan is instituting a formulary for Ig therapy.

Tune In to the IDF Advocacy Channel

IDF Action Updates

Immune Deficiency Foundation Biosimilars Testimony FDA 5-11-12
MAY 14, 2012

A-PLUS EHB Comments FINAL 1-30-2012
JANUARY 31, 2012

IDF and APLUS letter to Debt Supercommittee Oct 2011
OCTOBER 27, 2011

IDF Essential Benefits Testimony to HHS 10-20-2011
OCTOBER 27, 2011

Journal of American Medical Association Article on IVIG Legislation Featured in the July 13, 2011 edition

Policy Matters Blog:
Advocacy Day 2012: Another Step Forward

4-9-2012 6:15 pm

You know what I like best about IDF’s Advocacy Day? It’s being around patients with their spirit, enthusiasm and dedication and readiness to “tackle the world”. Our patients “ground” me. And I love watching the power their stories have with their elected officials and their staff. Those few moments with their elected officials are precious [...]