Patient & Family Handbook



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For Primary Immunodeficiency Diseases, 5th Edition

PUB-Thumb-Patient-Family-HandbookThis book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

Patient Family Handbook – (download the complete book)

Table of Contents

Editors, Contributors & Preface

Chapter 1 The Immune System and Primary Immunodeficiency Diseases

Chapter 2 Agammaglobulinemia- X-Linked and Autosomal Recessive

Chapter 3 Common Variable Immune Deficiency

Chapter 4 Selective IgA Deficiency

Chapter 5 IgG Subclass Deficiency

Chapter 6 Specific Antibody Deficiency

Chapter 7 Transient Hypogammaglobulinemia of Infancy

Chapter 8 Other Antibody Deficiency Disorders

Chapter 9 Severe Combined Immune Deficiency and Combined Immune Deficiency

Chapter 10 Wiskott-Aldrich Syndrome

Chapter 11 HyperIgM Syndromes

Chapter 12 Ataxia-Telangiectasia

Chapter 13 DiGeorge Syndrome

Chapter 14 Other Primary Cellular Immunodeficiencies

Chapter 15 Chronic Granulomatous Disease and Other Phagocytic Cell Disorders

Chapter 16 Complement Deficiencies

Chapter 17 HyperIgE Syndrome

Chapter 18 Innate Immune Defects

Chapter 19 NEMO Deficiency Syndrome

Chapter 20 Inheritance

Chapter 21 Laboratory Tests

Chapter 22 Infections

Chapter 23 General Care

Chapter 24 Immunoglobulin Therapy and Other Medical Therapies for Antibody Deficiencies

Chapter 25 Stem Cell Therapy and Gene Therapy

Chapter 26 Newborn Screening

Chapter 27 PrimaryImmunodeficiency Diseases and Allergies

Chapter 28 Autoimmunityin PrimaryImmunodeficiency

Chapter 29 Infants and Children Living with Primary Immunodeficiency Diseases

Chapter 30 Adolescents Living with Primary Immunodeficiency Diseases

Chapter 31 Young Adults Living with Primary Immunodeficiency Diseases

Chapter 32 Adults Living with Primary Immunodeficiency Diseases

Chapter 33 Health Insurance

Glossary

Resources

This book contains general medical information which cannot be applied safely to any individual case. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

FIFTH EDITION
COPYRIGHT 1987, 1993, 2001, 2007, 2013 IMMUNE DEFICIENCY FOUNDATION

Copyright 2013 by Immune Deficiency Foundation, USA.

Readers may redistribute this article to other individuals for non-commercial use, provided that the text, html codes, and this notice remain intact and unaltered in any way. The Immune Deficiency Foundation Patient & Family Handbook may not be resold, reprinted or redistributed for compensation of any kind without prior written permission from the Immune Deficiency Foundation. If you have any questions about permission, please contact: Immune Deficiency Foundation, 40 West Chesapeake Avenue, Suite 308, Towson, MD 21204, USA; or by telephone at 800-296-4433.

This publication has been made possible through a generous grant from Baxter International Inc.