- ABOUT IDF
- ABOUT PRIMARY
- Patient Insurance Center
- Bill of Rights for Patients with PIDD
- Patient Education Programs
- Peer Support
- Health Insurance FAQ’s
- Scholarship Programs
- USIDNET Patients
- IDF SCID Initiative
- Get Connected with IDF!
- IDF NEMO Initiative
- Clinical Trial Information
- Locate a Physician
- Ask IDF
- Volunteer for IDF
- IDF eHealthRecord
- IDF Kids Connection
- IDF Medical Advisory Committee
- IDF Nurse Advisory Committee
- Consulting Immunologist Program
- IDF & USIDNET LeBien Visiting Professor Program
- Continuing Education Course for Nurses
- Video Series For Nurses
- USIDNET Healthcare
- Health Insurance “How to Appeal” Tips
- Links to Professional Organization
- Healthcare Professional Contact
The Information IDF Collects
Personally Identifiable Information. During your interactions with the Site, such as when you register with the Site, IDF may wish to collect information that personally identifies who you are, such as your name, address, email address and/or telephone number.
Anonymous Information. IDF may collect non-personally-identifiable information during your visit. Examples of non-personally-identifiable information may include your Internet access provider, your computer’s Internet protocol (IP) address, information regarding your user profile, your browser and operating system, the date and time of your visit, the pages you visit, the address of any Site you linked from, and aggregate, statistical data such as usage, traffic patterns and user demographics based on your use of the Site. IDF collects non-personally-identifiable information in order to, among other things, provide you with or assist in the provision of information through the Site, to maintain the performance of the Site, and to make the Site more useful. IDF may also share this non-personally-identifiable information in aggregated form with third parties so that these third parties may provide you with more relevant services and advertisements.
IDF’s Use and Disclosure of Collected Information
Personally Identifiable Information Use. IDF may collect personally identifiable information such as your name, address or e-mail address in order to, among other things, add you to its immunodeficiency survey database, send you IDF updates and news, invite you to participate in anonymous surveys, and provide you with information and/or services that you have requested through the Site. By providing such personal information, you agree to such uses. IDF retains such personally identifiable information only for as long as is necessary depending on the reason for your submission of such personally identifiable information, and collects no more personally identifiable information than is reasonably necessary to fulfill the purpose for which such information is collected.
Personally Identifiable Information Disclosure. IDF recognizes your trust and fully respects your privacy. IDF does not sell or otherwise disclose any personally identifiable information to any third parties other than: (1) as required by law; (2) in the event of a sale, merger, public offering, bankruptcy or other change in control of IDF and/or the Site; or (3) with your affirmative consent at the time you provide such information. If you have indicated that you would like to receive information from IDF, we may send you occasional updates via e-mail. If you prefer not to receive these e-mail updates, simply follow the instructions on how to unsubscribe included in the messages you receive.
Electronically Produced Data
Action Tags. Like most standard website servers, IDF may employ a software technology called action tags (also known as “web beacons”, “single pixel gifs”, “clear gifs” or “web bugs”), which collect information and help to manage cookies, in order to gather information about Site usage. Action tags help IDF identify and track the performance of web pages on the Site, therefore allowing IDF to measure the performance and quality of the Site and to manage Site content. In addition, IDF may use action tags in emails. This allows IDF to gauge the effectiveness of certain communications by showing, for example, how many emails have been opened.
IP Addresses. An IP address is a number that is assigned to your computer when you use the Internet. Like most standard website servers, IDF collects IP addresses and other technical information about your machine through your web browser such as your operating system, browser type and referring URL for the purposes of, among other things, system administration and to ensure the validity of user requests.
Log Files. Like most standard website servers, IDF gathers certain information automatically and store it in log files, which contain information such as, among other things, IP addresses, browser type, operating system, ISP, date/time stamps and referring pages. Among other things, this information allows IDF to track statistics and trends on an aggregate basis.
Maintenance of Information and Security
Protections. IDF maintains physical, electronic and procedural safeguards to protect the confidentiality and security of any personally identifiable information that you disclose to IDF. IDF utilizes what IDF believes to be industry standard security measures to protect the loss, misuse and alteration of personally identifiable information under IDF’s control, and IDF limits access to your personally identifiable information within IDF to those employees who need to know the personally identifiable information to provide information, services and/or products to you. However, due to the nature of the Internet, computer networks, systems and other factors, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for third parties not under the control of IDF to intercept or access transmissions or private communications unlawfully, regardless of IDF’s best intentions. As such, IDF cannot ensure or warrant the security of any information you transmit to IDF, including without limitation personally identifiable information.
Review or Correction of Personal Information
Consent to Receive Notices Via the Site. By submitting any personally identifiable information to the Site, you are agreeing that IDF may deliver all privacy and opt out notices to you electronically, including via email to the most recent email address you have provided to IDF. By using the Site, you are agreeing that IDF may deliver all privacy and opt out notices to you via posting on the Site.
Links. The Site may contain links to third party sites at which your personally identifiable information is collected and used. Your visit to any third party website is governed by the privacy and other policies applicable to that site. IDF cannot control nor is it responsible for any such third party collection or use of your personally identifiable information or the content or policies of such sites, and IDF expressly disclaims any liability related to such sites.
Web Logs and Other Forums. The Site may offer web logs, web postings, bulletin boards, chat rooms, newsgroups or other forums which permit users to interact online. Any information you transmit or post online in such forums will be made public and IDF cannot control nor is it responsible for the use any third party may make of such information.
IDF Contact Information