With more than 400 primary immunodeficiency diseases (PI) recognized by the International Union of Immunological Societies, we have created an online guide to helping you understand them.
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The Rare of the Rare Summit is an opportunity for those affected by the rarest forms of PI to meet with NIH experts, learn about new research and therapies, and meet others who share similar experiences. Your feedback about unmet needs in these communities will help guide future programming from IDF.
IDF Regional Conferences, formerly known as IDF Retreats, are weekend gatherings designed with everyone in the primary immunodeficiency community in mind—including you! There is something for everyone at these conferences. Patients, parents, siblings, children, and partners are encouraged to attend and learn how to develop better approaches to living with primary immunodeficiency.
IDF Walk for Primary Immunodeficiency, held in cities across the country, helps create better lives for those living with PI, and fund vital programs and resources.
These fun getaways feature activities to build leadership skills, presentations from medical and life skills experts, a trip to Dave & Buster's for dinner and games and separate sessions just for parents.
The IDF National Conference is a platform for all facets of the PI community. From physicians to nurses to specialized life management experts, individuals and families are presented with an unsurpassed opportunity to network with those on the cutting edge of research and treatment.
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