The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
We’re here to answer your questions and provide assistance in any way possible. Here’s how to get in touch with the Immune Deficiency Foundation.
Phone: 410-321-6647
Email: IDF@primaryimmune.org
Address:
7550 Teague Road, Suite 220
Hanover, MD 21076.
Office hours: Monday - Friday, 9:00 a.m. - 5:00 p.m. (ET).
Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.
We hear you! Your first, best step, is to set up your My Account and make sure to subscribe to emails and text alerts. We’ll send you our most requested links and invitations to upcoming events related to your diagnosis and location. If you don’t want to wait, you can take a look at some suggested reading.
Selecting a health insurance plan can be a challenging process. Basic information to navigate insurance is available for the PI community.
Answers to specific questions, relative to cost and generally covered benefits, can be found by reviewing a plan’s summary of benefits, drug formulary list, provider network directory, or by contacting the insurance company. When speaking to an insurance representative, you should be able to receive answers to all of your questions. If not, ask to speak to someone who can answer them.
While this is often considered a tedious process, it is one of the most important steps you can take to ensure that a plan meets your needs. It is better to know everything you can about your plan before you select it than finding problems and hidden costs after you have made a decision. Please remember, it is okay to ask questions until you receive answers when communicating with insurance representatives.
Contact the PI Community Services Department at 410-321-6647 or volunteer@primaryimmune.org.
Contact the Communications Department at 410-321-6647 or submit our Ask IDF form.
Complete our healthcare professionals contact form to be added to our Clinician Finder tool. Our online tool helps connect patients with local PI specialists.
If you are having trouble logging into your My Account, complete the following form to submit an inquiry.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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