Press room
A hub of information for journalists interested in writing about the Immune Deficiency Foundation with direct links to learn more about the organization, immunodeficiency, and our community.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can manage it. Learn about PI diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), these resources will help you advance the field. Get details on surveys, grants, and clinical trials.
Recent news announcements from Immune Deficiency Foundation
Read up on a variety of topics related to primary immunodeficiency
About PI
Primary immunodeficiencies (PIs) are a group of more than 450 rare, chronic conditions where a part of the body’s immune system is missing or does not function correctly.
Learn more
Lived experience
Sometimes it's difficult to put a face to a rare, chronic, and often invisible disease. Explore the stories below to meet some of this community and put a face on the diagnosis.
Read patient stories
Policy issues
Our policy priorities fall into four major categories: ensuring access to care, providing a voice for those with PI, expanding screening and diagnosis, and supporting emerging research and therapies.
Policy initiatives
Research
The Research Grant Program supports patient-centered research focused on improving the treatment, health, disease management, or diagnosis of people with PI, as well as research that contributes to the general body of PI knowledge.
Learn about research grants
Grab your headphones
We produce more than a dozen podcasts each year, ranging from conversations with providers, to chats about various conditions to interviews with individuals who share their lived experience. All episodes have a growing listenership and tackle important topics related to PI.
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