Get involved
Be a hero for those with primary immunodeficiency (PI). Change lives by promoting awareness and taking action throughout your community.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Every voice is needed
According to the National Institutes of Health, there are approximately 500,000 individuals in the U.S. with a primary immunodeficiency. Every year, thousands go undiagnosed. By the simple act of getting involved, you can change this and make a difference. Whether you are just learning about PI, have been diagnosed for decades, are a caregiver or healthcare professional, every voice is needed. And it’s not just individuals who can get involved. Community groups and corporations are encouraged to join forces as volunteers and donors.
How you can help
Advocate
Even if you’re new to PI advocacy, there are many ways to raise awareness. We’ll help you get started.
Give
Your donation funds critical resources, services, and outreach to those who need it most.
Volunteer
Your time and expertise can transform the life of another through peer support and event volunteering.
Fundraise
Whether you join the Walk for PI or start your own Facebook fundraiser, all efforts can make a difference.
Participate in IDF events
IDF hosts support groups and educational events for those living with PI and their caregivers. We also present workshops for healthcare professionals as well as our signature events: Walk for PI, Advocacy Day, and a teen and young adult escape.
Share your experience with PI to help make a difference
IDF is conducting a national survey to learn more about the experiences of people with primary immunodeficiency receiving immunoglobulin (Ig) replacement therapy. The information gathered from the survey helps create manuscripts for publication in peer-reviewed journals to help broaden the understanding of PI and improve the diagnosis and treatment of these rare, chronic disorders.
Share on social
Join the more than 32,000 people following IDF on social media. You can post about your own experience with PI or share IDF’s post. Find IDF on these platforms:
More opportunities to get involved
Corporate sponsorships
IDF works closely with organizations and strategic partners that support our mission to improve the quality of life for people with PI.
Partner with IDF
2022 Annual Report
Learn how participation from volunteers, donors, advocates, and more helps those affected by PI.
Download the report
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