Events
Learn more about all the ways to learn, connect, and engage with IDF—online and in person.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Signature events
Learn more about IDF signature events: Advocacy Day, Young Advocates Academy, the PI Conference, the Teen and Young Adult Escape Weekend, and the Walk for PI.
Advocacy Day & Young Advocates Academy
Every day, Congress makes policy decisions that impact our lives. However, most legislators know very little about PI and the effect that different policies could have on those with rare, chronic conditions. By sharing experiences and resources with policymakers, participants help ensure the unique needs of the PI community are met. This is an opportunity for participants to travel to Washington, D.C., to meet with members of Congress, share their stories, and influence policy on May 1, 2025. Participants are chosen through a highly selective application process and receive advocacy training, as well as background on priority issues.
Young Advocates Academy a program for teens and young adults, is held one day in advance of Advocacy Day (April 30, 2025); programming is specifically tailored to young people (ages 15-25). On Advocacy Day, these young members of the community join other participants in meetings with legislators on Capitol Hill.
PI Conference
The Primary Immunodeficiency (PI) Conference brings together the entire PI community (patients, caregivers, and clinicians) for two days of connection, learning, and networking. Sessions from world-class immunologists, compelling panel discussions, and opportunities to connect with others are highlights of the conference.
First launched in 2001, the conference has been held in person in ten locations across the United States. Join us at our next conference: June 2026 in San Antonio, Texas!
Teen & Tween Escape
The Teen Escape is a weekend getaway exclusively for teens and tweens (ages 10-18) who have been diagnosed with primary immunodeficiency (PI). During the event, participants develop coping skills, promote and nurture friendships, and are provided with educational guidance. Parents/guardians can also participate in sessions geared toward their own issues and concerns.
With an ever-evolving, age-appropriate curriculum, medical and life skill experts present invaluable information for teens, tweens, and parents. These escapes provide a program in which teens/tweens living with PI and their families can relax, learn, have fun, and connect in a setting away from the familiarity of day-to-day medical concerns.
Walk for PI
The IDF Walk for Primary Immunodeficiency (PI) is an opportunity for communities across the nation to gather and raise both funds and awareness for PI and the immunocompromised community in general. Fundraising can be done in teams or individually, and locations vary by year.
These fun, enlightening, family-friendly events are open to all. If a walk is not happening near you, there is a virtual walk each year that includes people from all across the nation. Funds from the Walk for PI are used to support research grants and IDF programs that connect, engage, and empower those affected by primary immunodeficiency.
Have an idea for an event?
Do you have a suggested education event topic or a suggested presenter? If so, let us know below.
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