Join a Get Connected Group

What Are Get Connected Groups?

Get Connected Groups are free, virtual gatherings hosted by the Immune Deficiency Foundation for people affected by primary immunodeficiency. Whether you're newly diagnosed, a longtime PI patient, or a caregiver, there's a group designed with your experience in mind. 

Groups are organized by location, specific diagnosis, or lifestyle — so you can find the community that fits your life. These are peer-led conversations, not medical presentations or industry events. Just real people, sharing real experiences. 

All Get Connected Groups are hosted on IDF Friends, a private social platform built exclusively for the PI community. Inside, you can: 

• Browse and join groups that match your needs.
• View the meeting calendar and join live calls. 
• Participate in discussion forums between meetings. 
• Connect with others in a safe, secure space

Who can join?

Get Connected Groups are open to adults (18+) who are diagnosed with PI, currently seeking a PI diagnosis, or a parent or caregiver of someone with PI. Family members are welcome. The only restriction: attendees may not be employed by a company that provides products or services to the PI community.