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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025
plasma

COVID convalescent plasma approved for those who are immunocompromised

January 16, 2025
Ig graphic

Immunoglobulin product booklet

January 08, 2025
IDF 2024 research grantees Drs. Emily Harris, David Nguyen, Alexandra Martinson, and Laruen Meyer.

Foundation announces research seed grants

September 20, 2024
Man sitting at his desk on the phone.

Template letters of medical necessity for immunoglobulin

September 04, 2024
Nurses Advisory Committee members 2024 edit

New NAC members dedicated to solving the ‘puzzles’ of PI

May 23, 2024
School nurse holds stethoscope to child's heart

School nurses aid in care of children with primary immunodeficiency

April 16, 2024
Three doctors huddled in a discussion

Primary immunodeficiency education series boosts knowledge

March 26, 2024
Print Material Fallback

SCID: What healthcare providers need to know

September 10, 2023
alternating boxes with text and images

SCID telehealth for American Indians and Alaska Natives

September 10, 2023
IDF Think Zebra logo

THINK ZEBRA! poster

July 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: What have we learned?

July 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Addressing social determinants of health

July 10, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: All about teamwork

June 26, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Comorbidities and PI

June 05, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Newborn screening for SCID

May 22, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.