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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

family with baby

Family planning: thinking about the future

September 10, 2023
chart/table with categories

SCID family journey

September 10, 2023
IDF Think Zebra logo

THINK ZEBRA! poster

July 24, 2023
Young woman on a bridge.

Immune Deficiency Foundation Guide for Young Adults

February 02, 2023
Girl and classmates at school writing.

IDF School Guide for Students with Primary Immunodeficiency©, Fourth Edition

August 23, 2022
Person typing on a computer

Addressing caregivers’ mental health is key after SCID diagnosis

August 01, 2022
Two ambulances parked outside of a hospital emergency room.

I Am Immunocompromised emergency card

July 18, 2022

Parental mental health: Experiences across the SCID journey

July 14, 2022

(Español) Parental mental health: Experiences across the SCID journey

July 14, 2022
Print Material Fallback

"Always sick?" flyer

July 13, 2022
Compass

SCID Summit: A parent's journey with ZAP70 deficiency

July 06, 2022
Lightbulb

Understanding primary & secondary immunodeficiencies

April 08, 2022
IDF Podcast Graphic

How one family navigates isolation for SCID during COVID

September 30, 2021

Los años de primaria: una sesión para padres de niños con PI en los grados K-6

August 09, 2021

The elementary years: A session for parents of children with PI in grades K-6

August 09, 2021
Walk for PI participants take a selfie.

The role of family & friends in chronic illness: An IDF Forum, June 17, 2021

July 09, 2021
Supporting infants

Support your infant in the hospital

June 25, 2021

A parent's journey with SCID

June 10, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.