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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Fireside chat with Emily V. Gordon

August 17, 2023
2022 Annual Report

2022 Annual Report

August 10, 2023
Bryce Powerman visits his NIH doctors.

Bone marrow transplant curative for man with DOCK8 deficiency

August 09, 2023
undiagnosed podcast graphic

Undiagnosed episode 3 (ft. Ironmouse): "The performer"

August 04, 2023
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How to start a Facebook fundraiser

July 28, 2023
A microscopic view of blood cells and viruses.

Study examines procedure to treat severe CGD infections

July 25, 2023
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THINK ZEBRA! poster

July 24, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: What have we learned?

July 24, 2023
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Health plan cost comparison worksheet

July 21, 2023
Print Material Fallback

Personal health experience stat sheet

July 21, 2023
Josh Cash pilots a small plane.

NIH, IDF support young adult in his journey with PI

July 19, 2023
Closeup of a newborn's tiny feet and toes.

Study shows newborn screening improved SCID survival rates

July 13, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Addressing social determinants of health

July 10, 2023
Image of a woman and teen having a mother-son talk.

Teach teens with PI how to transition their healthcare

June 29, 2023
New  Nurse Advisory Committee members Laura Rohe and Victoria Anderson.

Nurse Advisory Committee welcomes new members

June 27, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: All about teamwork

June 26, 2023
CDawgVA honors fellow streamer Ironmouse with auction for IDF.

CDawgVA honors fellow streamer Ironmouse with auction benefitting IDF

June 21, 2023
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CDawgVA talks history, career, and philanthropy

June 20, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.