You are here

CGD News

CGD News

July 13, 2021
Living with CGD

Free Wellness Kits Available

POSTED BY: mtewey

Are you living with Chronic Granulomatous Disease (CGD)? Our friends at ANGEL AID are offering a limited amount of FREE Trauma-less Needle Pokes Wellness Kits to the CGD, Cystinosis, and Urea Cycle Disorder (UCD) communities. Each Wellness Kit includes: Trauma-less Needle Pokes Seven Steps Checklist Buzzy® Bumble Bee XL pain-blocker device

Read More
June 28, 2021
Living with CGD

'Be Your Own Advocate'

POSTED BY:

As an 18-year-old, Paul Boorack developed a high fever and had trouble breathing. He immediately visited his pediatrician who took a chest X-ray and sent him straight to the hospital. Paul had pneumonia – and stayed in intensive care for seven days. After that first time, Paul, who has chronic granulomatous disease, knew the symptoms of pneumonia

Read More
May 21, 2021
Living with CGD

PI Conference Offers CGD-specific Sessions

POSTED BY:

Would you like to learn more about your diagnosis? Explore facets of treatment? Connect with others who have CGD? And be part of the largest gathering of PI patients in the world? Then it’s time to register for the 2021 Primary Immunodeficiency Conference, which takes place online from June 23-26.   This free conference brings together the

Read More
April 30, 2021
Living with CGD

Living Life to the Fullest

POSTED BY:

Robert Karp enjoys a good physical challenge. Paddleboarding, racquetball, tennis, scuba diving, and sky diving are among his list of favorite activities, along with his current passion - indoor rock climbing. He’s even participated in 5K mud runs, a jog (or slog) through mud pits and other obstacles. For Robert, diagnosed with chronic

Read More
March 30, 2021
Living with CGD

Determined to Keep Moving Forward

POSTED BY:

In 1982, Antony and Alphonsa Raj sold everything they had and took their 7-year-old daughter Susanna to Canada, days after their youngest son, Savio, 6, died from infections resulting in fever, lung lesions, and kidney problems. Susanna also suffered from constant infections, and her older sister Sharmila died from infections at age 6. Doctors in

Read More