The National Institutes of Health (NIH) has one of the largest single-center groups of persons in the world who have undergone bone marrow transplants for chronic granulomatous disease (CGD) in clinical trials, serving as an important resource for those diagnosed with CGD. At the Immune Deficiency Foundation’s (IDF) 2022 Primary
Read MorePatrick Chew spent his childhood coping with infections and frequent hospitalizations. In his adult life, he developed additional complications in the form of autoimmune issues. All were caused by chronic granulomatous disease (CGD). Prophylactic antibiotics and antifungals and injections of gamma interferon decreased the frequency of infection
Read MoreParents Marge Fujikawa and Irving Chew understood the gravity of their two sons’ diagnoses of chronic granulomatous disease (CGD). They ensured their children received the proper care for their many infections, which sometimes meant spending weeks in the hospital, and administered their preventative medicine – injections of gamma interferon,
Read MoreWhen a child is first diagnosed with chronic granulomatous disease (CGD), it can shock families and bring up challenging emotions. Many parents experience anxiety and depression, as they’ve watched their child struggle for months or years with infections, surgeries, and hospitalizations, only to be told that the cause is CGD. CGD is a
Read MoreUpdate Prior research studies have shown that female X-linked carriers of chronic granulomatous disease (CGD) – mothers, daughters, sisters, aunts, and grandmothers – exhibit some symptoms related to the disease. The most common are discoid lupus (which causes round lesions on the skin), mouth ulcers, and joint pain. But a new study that
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