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CGD News

March 08, 2022
Living with CGD

PBS program highlights CGD diagnosis and treatment

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  A PBS health program focusing on chronic granulomatous disease (CGD) is now available on YouTube. Part of the PBS Exploration Health educational series, the 15-minute piece examines the science of chronic granulomatous disease (CGD), profiles persons living with CGD, interviews doctors serving the CGD community, and explores the various

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February 28, 2022
Living with CGD

'Take the reins of your own healthcare'

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Casey Warford is a patient peer mentor, and every few months he speaks to persons living with chronic granulomatous disease (CGD) and their families about the importance of taking medicine to reduce chances of infection. Casey Warford, diagnosed with CGD, is a patient peer mentor. Warford, diagnosed with CGD, pays particular attention to the

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January 07, 2022
Living with CGD

Drug prevents major bone marrow transplant complication

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The Food and Drug Administration (FDA) recently approved Orencia for use in the prevention of graft versus host disease (GVHD). The drug was originally created to treat rheumatoid arthritis and has been approved for that use in the U.S. since 2005. GVHD is a dangerous health condition that can occur after a stem cell transplant, also known as a

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December 17, 2021
Living with CGD

Experts discuss bone marrow transplant for chronic granulomatous disease

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Hematopoietic stem cell transplant (HSCT), also known as bone marrow transplant (BMT), is a treatment option for children with chronic granulomatous disease (CGD), but caregivers and healthcare providers must weigh several factors before moving ahead with the procedure. To provide an overview of considerations for treating CGD with BMT, IDF

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November 16, 2021
Living with CGD

Bone marrow transplant boosts health of boy with CGD

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Diagnosed with chronic granulomatous disease (CGD) within his first month of life, Brandon Wiehe struggled with inflammatory bowel issues and abscesses as a baby and into his toddler years. Brandon hugs mom Carly during an outing.   Pained by her son's suffering, and worried that the wrong infection could mean the end of Brandon’s life, his

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