The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
The Immune Deficiency Foundation (IDF) is happy to announce the passage of House Bill 412 (HB 412) in Ohio. This important bipartisan legislation, sponsored by Representative Randi Clites and Representative Timothy Ginter, will create the Ohio Rare Disease Advisory Council to give a voice to the Ohio rare disease community, including individuals with primary immunodeficiency (PI).
IDF is proud to have supported the passage of HB 412 in the Ohio State Legislature and looks forward to working closely with and supporting the Ohio Rare Disease Advisory Council once it is formed. Once this bill is signed into law, it will bring together medical researchers, physicians, nurses, individuals living with rare diseases, lawmakers and state officials to begin addressing many of the issues facing Ohioans living with rare diseases.
“In passing this legislation, the legislature paves the way to providing the expertise that lawmakers need to solve the issues facing those living with a rare disease, creating better healthcare policy in the state, and delivering better access to government to those living with a rare disease,” said Representative Clites.
This important legislation now goes to the Governor's desk, where IDF hopes Governor Mike DeWine will sign this bill into law. Follow IDF’s social media channels for updates on HB 412!
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
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