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Living well with PI: Caregiving for chronic illness

September 08, 2025

Jocelyn Cooper (Program manager, Black Women's Health Imperative) and Holly Jones (Executive director, HERstory In Color) give a presentation on caregiving and chronic illness.

 

Links:
https://21259597.fs1.hubspotusercontent-na1.net/hubfs/21259597/RDDC/Inequities%20In%20The%20Rare%20Disease%20Community%20Survey.pdf

RDDC Patient & caregiver advisory board interest form: https://docs.google.com/forms/d/e/1FAIpQLSfRLHzzCx8IyPQ60vHW-KjbN4-TMniuvkKrUc-EdQUAPLqxVQ/viewform

HERStory in Color: https://herstoryincolor.org/

IDF Caregiver compassion & connection guide: https://primaryimmune.org/resources/print-material/caregiver-compassion-connection-guide

RDDC: https://www.rarediseasediversity.org/

This page contains general medical and/or legal information that cannot be applied safely to any individual case. Medical and/or legal knowledge and practice can change rapidly. Therefore, this page should not be used as a substitute for professional medical and/or legal advice. Additionally, links to other resources and websites are shared for informational purposes only and should not be considered an endorsement by the Immune Deficiency Foundation.